fed up
 

i hate the pain crps gives me, nothing is truely working anymore. i have a bio skin sleeve to wear and a glove, 10 mg of predisone daily, also hydrocodone as needed, lidocaine ointment too. so done dr isnt mch help and nuero sent me on way nothing she can do. what other dr might help? pain dr said he is afraid of doing injectio cuz it may spread again.

Having an open mind and having a medical team with open minds will offer best results. If you feel something within reason is worth trying and a doctor won't consider, find a new one.
Try all modalities and if ten fail with one having success, that is progress. Try different medications and procedures. There are many therapies to our disposal.
Realize even a tiny bit if pain relief with RSD is a huge victory. Usual cases don't really involve major pain relief, just enough to get through the day. The real fight is the spread and making it worse.
Good luck and best wishes.

problem i face is no one seems to really wanna change meds, oh i might get addictd, been on hydro for 11 plus years from back injury and very rare that i use all in 30 days

Something that has really helped me is ketamine nassal spray and lossanges they help numb the skin to keep the burning away.

my doctor is trying to find some others to come on board with me. there are few cases here in northern maine. about 2 hour from canada and im in the last town with a hospital...im now a study because even the er docs knew nothing til after i went thru there