Two surgeries for TOS have more pain now.
 

I have had two surgeries due to tos. It's been 7 months and I am now in more pain than I was before. My doctor says we are stuck! Was told yesterday there is nothing more he can do except help me control the pain with medication and therapy. I'm 33 years old with 4 kids and now I'm trying to figure out how to claim disability. Any advice/help as I am really having a hard time with all of this.

There is a TOS forum on this site with a lot of helpful information. I have had two surgeries on just my left side and still deal with some issues. I take gabapentin and cymbalta which have really helped with the pain. I am 16 months post op and have seen some improvements over that time. I am grateful for every improvement that I have seen and have taken necessary steps in changing my lifestyle. I am on disability, but mine is through a pension system. There are others on this site that can be helpful for you. You are not alone and this site has been very helpful for me. Thoracic Outlet Syndrome can be a bear to deal with at first, but my life as really improved over time.

Hi Sarah
 

Welcome to Neuro talk. You have been through alot. Have you gotten more than one or two opinions about the TOS after the surgery? I know how difficult it must be with the children. I would also ask in the Social Security forum about the dissability issues. Your doctor should be behind this 100%. The process is long, and a personal letter from all your doctors will help in the long run. A dissability lawyer, or representative is almost a must to keep things moving along. You can't help what happened to you, so I don't think your age will necessarily work against your favor. It is the truth however that this process takes quite awhile. Please get a few more opinions to make sure there is nothing more that can be done to correct the condition. I will keep you in my thoughts and prayers. I hope alot of others come by to say hello and offer support. ginnie:hug:

Hello Sarah!
 

Welcome to NT! :hug:

You've certainly come to a great place for support and understanding!
You'll find the folks here to be very helpful and friendly.

Make yourself right at home!

Here's the link to our SS Disability forum:
http://neurotalk.psychcentral.com/fo...aysprune=&f=28


It's great to have you with us.

Rae
:grouphug:

Nice to meet you!!
 

Sarah,

:Wave-Hello: It is great to have you come and be with us. You will fine a great number of dear friends to listen when you are in need of ears. Please, just let us know how we can help you out. You will find out we are supportive and relaxing place.

Please keep us up to date on your situation. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you. :smileypray: