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-   -   Grief and Loss, the Path Well Worn (https://www.neurotalk.org/coping-with-grief-and-loss/182843-grief-loss-path-worn.html)

Mark56 01-24-2013 01:57 AM

Grief and Loss, the Path Well Worn
 
The human condition is well fashioned from personal perceptions brimming with grief and loss. I remember from my youth seeing my Grandpa, or at least his body, lying in a coffin on the evening of the visitation after we had torn across country in the Chevy to be with my mother's very large farming family. How could he be dead? I love him!!!!! I cried so many tears, so many tears.....

A childhood introduction to grief and loss up close and personal is a stark beginning to this episode of existence we refer to as life. Wondering how could he be gone, where did he go, what about Grandma, will I wind up there soon, and is it awful lying in a coffin thus- are questions which ran on a loop through my infantile cerebrum as clear liquid, salty, and which made my eyes burn, pour profusely down my cheeks. I felt ALL ALONE that night, all alone, in a room overfilled with people as my Grandpa lay silently just there. Not out of reach at all. And hadn't it only been a few months ago he had visited us in Colorado and he and I gathered blue bells to hold for a photo op while our alternate hands held large and very COLD snow balls. Tht photo is etched into the album of my mind, always ready to replay at a momentary command. My Grandpa.

Not long in life terms later..... maybe seven years or so, my absolute favorite cousin passed from a car wreck on I-70 driving his favorite Chevy Belair. His speed was high, so I am told. The results produced a closed casket affair. Me? Well, I was not allowed to attend, because my mom wanted the time to be with her sisters, and since I was a boy.... well, it did not suit for me to have been so shaken up. Not a manly thing, that. Grief. Chapter Two.

Three more grandparents in a row passed through the years, and as I attained greater age, wealth, and maturity I could take hold of the reins and attend to situations confering love and blessing on those who had loved me BEFORE they passed.... you know, being aware of their enfeebling health in advance of that long awaited appointment with mortality. I could leave on a jet plane and very quickly be at their side sharing my love of them. This I did, wanting each to know of their impact on my life and the joy I gained from their presence..... in doing this, I seemed to gain overwhelming peace as the moments of their passing came, then blew into the detritus of history as leaves along a deserted country road. So glad I took time for those very special people IN ADVANCE.

Almost two years ago now.... though there had been a good many more passings in between, our first grandchild, a little girl- Lilly her given name- passed through our lives as a lit match, especially the paper kind, rushes on toward its terminal extinguishment. She had developed with an awful genetic mishap in formation; one of those, who would have guessed kind of happenings. She came stillborn. I bawled as my insides melted then poured out not unlike the sorrow I had felt as a child when Grandpa, my flower gathering friend, passed. Lilly was here, but not here, we held her fleetingly so the sterility of hospital protocol might rapidly thereafter sweep in to whisk away remains..... simple that, the word remains. A little life prepares us for unparalleled joy, is swept away, and there are merely REMAINS where only a couple of weeks before we had known there was a kicking baby, felt still in mama's tummy. Sorrow without end in sight, the supply seemingly "tacky restaurant" style unlimited refills. The well of sorrows was creating a flood.

Far more recently, I learn last night with my family my Dad has untreatable inoperable cancer. Were he physically healthier we might be thinking in terms of treatment. Not so here.

Dad has that Alzheimers bug. You know the one.... many fear it so badly, they shun families affected by it for fear, seemingly, of contracting a non-infectious disease. Shunning. Shame. The really good stuff of which our society which comes together to spend millions following a popular cause or political gnat turns on a dime to pour separation, shame, indignance, and yes shunning upon folks who bear the calamity of something as insidious as Alzheimers.

Grief. Loss. I definitely felt Grief and Loss when, three years ago, Dad no longer remember I existed. For me, THAT was the day he died. In the meantime, the operating shell of his body continued to perk along. Sure, there were the haltingly embarassing moments of Dad coming outside to see family members off after a visit. He was attired in one of Mom's dresses. Seems he thought it was his bathrobe........ recently equipped with a back zipper. And, he who was a smart fellow engineering wise now polices the lawn of the family home for fallen leaves. It sounds pretty good, except upon realization he putters about the lawn with trashbag in hand picking ONE LEAF at a time from the grass to place it gently into the bag. This is not the person who was my Dad.

Cancer. Used to be that was feared more than Alzheimers. Not so now. Stir them up in the same body, and a rapidly terminal situation is at hand.

Last night, after learning of Dad's terminal illness on top of his terminal illness I sat and remain totally numb. The man I knew as Dad passed mentally three years ago. His body lingers. Lingering will now be accelerated to a finish line. I did not feel like crying. I worked through much grief and loss when Dad mentally died.

Now we wait.

Time will reveal the toll the blended diseases will exact upon my Dad. Will I cry? Are my tears all spent from grieving his loss years earlier? That broke my heart. This, I see as a release of Dad finally from the prison of mental morbidity in which he has been trapped these many years. A blessing as it were.

This road of grief and loss is now far too familiar. The losses have been far more numerous than detailed in this post. The road is one I do not like so much and it has potholes, cracked pavement, and the bridges are not so nice anymore. Familiarity is breeding a sense of discontent not complacence. I hope heaven will bring far more joy to Dad than these most recent of years.

Gonna pull the "car" over to the side of this road just now, I am tired, rest needed. Think I will just turn the key off for a while and sleep.

Grief and Loss consume my strength.
Even so, I am blessed,
mark56:grouphug:

ger715 01-26-2013 01:01 AM

Mark,
I understand your sadness dealing with the loss of the person you once knew, as well as the dad who once knew you as well.

As you know, I was operated for rectal cancer (a 2inch tumor at the top of rectum) Kemo and Radiation was suggested by the surgeon. Because he at least wanted me to make an informed decision, I did see the two doctors. I have declined to have additional treatment. I have not been told I am terminal; but as the surgeon has said; some of cancerous cells which cannot be seen at this time may be there.

It's hard to explain; but with the terrible pain of the nerve damage, spine fusion, PN, the news I had cancer was almost a relief. I never shed a tear. My children said they understood my decision to decline treatment. My son said he felt he may be a bit selfish; but wished I would reconsider. My son also mentioned shortly after I came home from the hospital how much I had changed and seemed actually calmer and if possible, happier.

The end phase of the Alzeheimers possibly would be much worse than his passing sooner because of terminal cancer.

Special intentions in prayer are offered, during this difficult time, for you and your family.


Gerry

Mark56 01-26-2013 07:57 AM

Thank you Gerry
 
I do so appreciate your special thoughts and reply. When you let go and let God, an overwhelming peace like a river can envelop you. I feel it from my perspective. I have not cried about Dad. Even yesterday, I phoned the house and he answered the phone. He was his Alzheimers happy self, not a clue, and though he knew me not and wondered who Mark was, he was willing to reciprocate my offering of love for him.

Bittersweet, that, for in his younger days, he could not easily reciprocate love, telling me it was a left over from his upbringing and his ethnicity. Huh. Love is what makes ALL of this plain of existence tolerable. Agape. A wonderful word, a beautiful emotion.

That you and your family are understanding the reality of celebrating your life with peace restored is quite a blessing. I, too, have that feeling within.

I grieved and cried of my loss of Dad when he no longer knew me, a death in a way.

Looking forward to the reward which follows this life,
Hoping to make the acquaintance of our deceased granddaughter,
sort of like the Great Divorce, what a read,
Agape,
Mark56:hug::grouphug:

ger715 02-01-2013 09:31 PM

Mark,

Like you; so look forward to what Jesus', thru His Father, promised.
But; we have work yet to do. In the meantime, waiting for His call.

Gerry

Mark56 02-02-2013 03:04 AM

Beautiful
 
Quote:

Originally Posted by ger715 (Post 953368)
Mark,

Like you; so look forward to what Jesus', thru His Father, promised.
But; we have work yet to do. In the meantime, waiting for His call.

Gerry

Beautifully said Gerry
m:hug:

takinxanax 04-16-2013 02:53 PM

I've recently come to terms with the fact that my husband of 20 years has always had effects from an old TBI. It has been a frustrating marriage! I feel like I wasted my life. When I think about leaving I feel so much grief but I don't know what else to do because it's not a happy situation. We didn't have children and we are kind of isolated because all he wants to do is go to work-which I'm grateful he can still do. Please don't tell me to take care of myself or join clubs. Been there..done that. I am talking about the searing grief of being 56 and feeling alone and wondering if it's too late to have a good life. Can't really make a move until grief is a little better under control, you know, not so overwhelming.

mg neck prob 04-17-2013 01:48 PM

Quote:

Originally Posted by takinxanax (Post 975672)
I've recently come to terms with the fact that my husband of 20 years has always had effects from an old TBI. It has been a frustrating marriage! I feel like I wasted my life. When I think about leaving I feel so much grief but I don't know what else to do because it's not a happy situation. We didn't have children and we are kind of isolated because all he wants to do is go to work-which I'm grateful he can still do. Please don't tell me to take care of myself or join clubs. Been there..done that. I am talking about the searing grief of being 56 and feeling alone and wondering if it's too late to have a good life. Can't really make a move until grief is a little better under control, you know, not so overwhelming.

No I dont think its too late to have a good life. I read what you been thru and knowing your life isnt going to change until you decide to make the move. My guess is another factor is your concern is who will now take care of him? I admire you for all the things you have done but I know what its like to feel suffocated when your with someone you love --but your not in love with anymore. Its very difficult. I know for me it came down to is its never going to change and if I want it too --I would have to be the one to leave. I wish you all the best!!

takinxanax 04-18-2013 06:43 AM

To MG
Would like to hear more from you! I think I know what you're saying but my head and heart are not in sync. That is exactly what my mother said too-who is going to take care of him? I keep trying to come up with a creative solution. Also, I feel like I will be blamed. He is a nice person, but this is NO marriage!

mg neck prob 04-18-2013 11:57 AM

Quote:

Originally Posted by takinxanax (Post 976173)
To MG
Would like to hear more from you! I think I know what you're saying but my head and heart are not in sync. That is exactly what my mother said too-who is going to take care of him? I keep trying to come up with a creative solution. Also, I feel like I will be blamed. He is a nice person, but this is NO marriage!


Hi Tak,

Your heart and head not being in sync is totally normal not sure how they could be --you been in a 20yr marriage. Your right you will prob be blamed-- if you decided to leave-- every family needs a scapegoat!! The only part of that-- you can control is --your part. Maybe by sitting them down and explaining to them what your life has been like--- and how long you been suffering. Not sure if he has a brother or sister to help look out for him? I get what your saying about the age thing too--- but didint you hear 50's is the new 30's... LOL. Im in your age bracket so I get that too being part of the equation in your mind. If your in love with your friend (not sure) it makes thing even harder on you-- on a daily basis-- because you may be torn on a new life as well as your old life. Does your husband know your this unhappy?

takinxanax 04-18-2013 12:48 PM

MG, I've told husband how I feel but he doesn't seem to "get" feelings very much. Since his neuro diagnosis I'm hanging back and observing him closely so I really get an unbiased, non-judgemental assessment of him and that will help me make a decision. I just kind of let him do his own thing and think of him as a roommate or child. I do believe I am in love with my new friend. Known him all my life and kind of a crazy coincidence how we reconnected. Thanks for the heads up on being scapegoated. I did talk to his one and only brother 70 miles away. To tell you the truth I don't think anyone in his family has much to offer. Eventually he is going to have to let me know what he wants to do too. Keep writing if you want its very helpful!! Thank you.

mg neck prob 04-18-2013 01:02 PM

Quote:

Originally Posted by takinxanax (Post 976254)
MG, I've told husband how I feel but he doesn't seem to "get" feelings very much. Since his neuro diagnosis I'm hanging back and observing him closely so I really get an unbiased, non-judgemental assessment of him and that will help me make a decision. I just kind of let him do his own thing and think of him as a roommate or child. I do believe I am in love with my new friend. Known him all my life and kind of a crazy coincidence how we reconnected. Thanks for the heads up on being scapegoated. I did talk to his one and only brother 70 miles away. To tell you the truth I don't think anyone in his family has much to offer. Eventually he is going to have to let me know what he wants to do too. Keep writing if you want its very helpful!! Thank you.

Hi Tak,

I think you sound like a really good person and have been a good wife. At the sametime. I think you have every right to be happy. The good thing is he might mentally be all he can be-- but he works and can fend for himself. How many years has he been emotionally detached ? I worded that wrong --i meant at least physcially him being able to work is a good thing.

takinxanax 04-21-2013 09:41 PM

I think you are right that he is "all he can be". I've always felt something wasn't right but couldn't put my finger on it-emotionally detached is a good description. I offer to help him but he doesn't want it. I get that...he just wants to keep doing what he has been doing, I am the one who has changed and am unwilling to live like this much longer (confused and lonely).
Our car insurance company wants to "review" the policy and I fear we may be dropped again. He had two accidents this winter.
I wonder what kind of help would be good for him; memory is at 10%-12%. Not sure what that really means but It sounds like he only remembers 10% of what he hears, and that seems pretty low!
Thank you for your validation that I have the right to be happy. I'm no good to anyone this unhappy. Looked at a beautiful townhouse today by myself and did some dreaming.

mg neck prob 04-22-2013 08:19 AM

Quote:

Originally Posted by takinxanax (Post 977215)
I think you are right that he is "all he can be". I've always felt something wasn't right but couldn't put my finger on it-emotionally detached is a good description. I offer to help him but he doesn't want it. I get that...he just wants to keep doing what he has been doing, I am the one who has changed and am unwilling to live like this much longer (confused and lonely).
Our car insurance company wants to "review" the policy and I fear we may be dropped again. He had two accidents this winter.
I wonder what kind of help would be good for him; memory is at 10%-12%. Not sure what that really means but It sounds like he only remembers 10% of what he hears, and that seems pretty low!
Thank you for your validation that I have the right to be happy. I'm no good to anyone this unhappy. Looked at a beautiful townhouse today by myself and did some dreaming.


Hi Tax,

It sounds like your on the right path and planning. Nobody should feel this miserable! I can tell by your post your at the end of your rope with him. Nothing easy about ending a 20 yr marriage. Im glad your starting to think of your future-- and planning for it--very smart move!! Im sure it feels good to finally see a path for yourself you been dealing with this so long. It funny sometimes how things get revealed in life-- faster then we think --this insurance prob maybe provided you the little push you needed. Keep me updated--ok? Thanks Im glad for you. :)

takinxanax 04-23-2013 03:54 PM

Moving forward
 
Last night my husband, John, went to a brain injury, stroke survivor group on his own! I am glad he is starting to accept things. He will need some support systems and friends in the future. I am done arguing with him and try to help him. Today he forgot his billfold at home, left lights on, left empty bottles for water pickup on the porch even though it was last week. Good thing he only drives 4 miles to work. I will keep you posted. I am feeling good and happy today!!

ginnie 04-23-2013 04:12 PM

hello Mark
 
You expressed grief and loss from your own intimate experience. I am sorry you are going through all this with your dad. The human condition, it grabs us all, and it hurts. I wish I could grab you right now and give you a hug and tell you I care. I lost both my folks, have no contact with my daughter and grandchild, I know the pain you are feeling. We so need our faith, and each other when these traumas visit us. I want you to know that I may not write every day, but I read all the posts. You will be in my thoughts and prayers, and I asked my angel to visit your dad. I am with you as a sister Mark, and I never will forget you and your family in my prayers. May God and his son, watch over your family and give you the strength you need. xxxginnie:hug:

ginnie 04-23-2013 04:22 PM

Hello takinxanax
 
I am sorry for you and the pain you feel in your marriage. You have a right to seek some happiness. We are only on this earth a short time. I am 61, and alone too. I do have a son who stays close to me.
If your husband does not want to change or seek council to improve the situation, that ties your hands and leaves you not many options. I know leaving would be full of grief, but sometimes in order to live your life it is something to consider. I do think marriage is a commitment, and vow, sacred, however it takes two to make a marriage. Would a trial seperation wake your husband up to the grief you are feeling? Can it shake him and let him know you need more? Just from my own experience, and I did fail at a marriage, I would rather be alone, than stuck in a marriage that hurts. Life hurts, your spouse is to be the one you turn to. I don't think you can do that with your husband. For your own mental well being, maybe council would help you to cope, just for your own sake. Getting an outside opinion on the situation may help to bring light on this sad situation. I will keep you in my thoughts and prayers. We do need friends when things hurt. ginnie:hug:

takinxanax 05-01-2013 02:23 PM

Still trying.:rolleyes:Took his neuropsych report to a county social worker for a second read because the guy that did the test and report was kind of a schmuck. She said looks like some ADD, and not so sure about the memory issues because of the way it was written. She said he needed further testing and it would be a really good idea. Meanwhile, we don't talk about it at home and it's weird and intolerable (almost) to me to be living with someone that I can't communicate very well with. I feel angry that he wasn't honest and forthright when we got married and I asked him about his cognitive disability and he said he had no issues. I keep going over it in my mind...was I in denial or what? I never wanted t live like I do. Islolated with a person that makes me feel crazy!

mg neck prob 05-01-2013 04:19 PM

Quote:

Originally Posted by takinxanax (Post 979812)
Still trying.:rolleyes:Took his neuropsych report to a county social worker for a second read because the guy that did the test and report was kind of a schmuck. She said looks like some ADD, and not so sure about the memory issues because of the way it was written. She said he needed further testing and it would be a really good idea. Meanwhile, we don't talk about it at home and it's weird and intolerable (almost) to me to be living with someone that I can't communicate very well with. I feel angry that he wasn't honest and forthright when we got married and I asked him about his cognitive disability and he said he had no issues. I keep going over it in my mind...was I in denial or what? I never wanted t live like I do. Islolated with a person that makes me feel crazy!



Hi Tak,

I was wondering how things were going for you. That would drive me nuts too!! Does he still think he doesnt have any issues?

takinxanax 05-02-2013 07:24 AM

Love it-"That would drive me nuts too"..ha ha. Kind of admits it, but says he can manage it on his own. I keep trying because I'm scared to get div. and move and stuff! What if I regret it?

mg neck prob 05-02-2013 08:14 AM

Quote:

Originally Posted by takinxanax (Post 980016)
Love it-"That would drive me nuts too"..ha ha. Kind of admits it, but says he can manage it on his own. I keep trying because I'm scared to get div. and move and stuff! What if I regret it?


Tak,

Thats OK ---you have to follow your gut. If/when there comes a time you will know for sure. I still would always have a plan or start making one just in case ..like savings account for yourself etc...if that does come it just makes it easier one less thing to worry about. I admire that you keep trying and it will be easier for you in the long to deal with a divorce and mentally to heal from it --because you will know tried your best. At our age and spending 20 yrs with someone -- its very normal to be scared and start over thats why I suggest you always have a back up plan.Its your life and you have do what feel right for you.

Mark56 05-04-2013 09:04 AM

Making a Move
 
Quote:

Originally Posted by takinxanax (Post 975672)
I've recently come to terms with the fact that my husband of 20 years has always had effects from an old TBI. It has been a frustrating marriage! I feel like I wasted my life. When I think about leaving I feel so much grief but I don't know what else to do because it's not a happy situation. We didn't have children and we are kind of isolated because all he wants to do is go to work-which I'm grateful he can still do. Please don't tell me to take care of myself or join clubs. Been there..done that. I am talking about the searing grief of being 56 and feeling alone and wondering if it's too late to have a good life. Can't really make a move until grief is a little better under control, you know, not so overwhelming.

My Mom-in-Law.... thus you know how much I love her dearly.... "made the move" at about your age now so many years back. Having done it, she blossomed in joy with one whom she wed and it was as if she was reborn. She and he came to hold very very special place in my heart as my "parents" and he even came to refer to me as his child, such was our love.

Mom and Grandpa F knew twenty years of bliss together until he went to be with the Lord about ten years back. Yeah, Mom is pretty far along in years now, and she looks with great fondness at the time she had in the GOOD LIFE she came to know.

Blessings on you, :hug:

Mark56 05-04-2013 09:08 AM

Thank you SO much
 
Quote:

Originally Posted by ginnie (Post 977727)
You expressed grief and loss from your own intimate experience. I am sorry you are going through all this with your dad. The human condition, it grabs us all, and it hurts. I wish I could grab you right now and give you a hug and tell you I care. I lost both my folks, have no contact with my daughter and grandchild, I know the pain you are feeling. We so need our faith, and each other when these traumas visit us. I want you to know that I may not write every day, but I read all the posts. You will be in my thoughts and prayers, and I asked my angel to visit your dad. I am with you as a sister Mark, and I never will forget you and your family in my prayers. May God and his son, watch over your family and give you the strength you need. xxxginnie:hug:

Dear Heart, you are a precious friend. Thank you so much for your message and your prayers,
Blessings :hug:

Mark56 05-04-2013 09:16 AM

Manage it on his own
 
Quote:

Originally Posted by takinxanax (Post 980016)
Love it-"That would drive me nuts too"..ha ha. Kind of admits it, but says he can manage it on his own. I keep trying because I'm scared to get div. and move and stuff! What if I regret it?

Actually, seeing the "I can manage it on my own" phenomenon being played out through a brother-in-law of mine, I am certain such statements are hogwash. Last weekend, being with family mourning the loss of a sister-in-law to RSD associated matters, we had to deal with brother-in-law's dysfuntion, his berating me, his emotional pummeling both me and my blessed wife, and to tell you the truth, I HAD ENOUGH OF IT FOR A LIFETIME.... there, I shouted and got it out.... :(

When challenging brother-in-law to seek and GET help, having him sit in a chair opposite me screwing his face up and pounding his forehead with index finger saying "I am working on it myself.... in here" I am absolutely certain he is denying every opportunity to receive true help. He is a controller. He is lost. He causes harm with nearly every word issued from his mouth.

I am done with him. Don't need the "brain damage" anymore.

That is just my take on "managing it on his own."

Blessings, :hug:

takinxanax 05-08-2013 05:01 PM

New info
 
Yesterday I went to our county social services office and met with a social worker that reviewed his neuropsych report. First of all he said it was a poor job and that my husband was ripped off. Then he said, he has learning disabilities but is high functioning in mechanical skills/thinking. He said is very adaptable and smart. This leaves me to know that a lot of his behavior is personality as well. Thanks for your posts about your personal experiences of "moving on". I started a divorce support group two days ago (he doesn't know it) and it was just in time because this weekend he is going to our cabin (I can't afford to) by himself and said "you can go if you want to." Huh? I feel so abandoned and alone, but I know that I will recover. I have plenty of stuff at home to keep my busy and am going on Mem. Wknd., that's if we are still together. It's hard to ride 4 hours with him in the vehicle. He keeps most of his money and I struggle to get by on mine and I need a car repair. Going to the cabin is at least $250.00
My heart is heavy but I know I will never be happy with him.

takinxanax 05-08-2013 05:03 PM

I need to stop sounding and feeling like a victim!

ginnie 05-08-2013 06:16 PM

Hello takinxanax
 
It is so hard when relationships go their seperate ways. It takes time to move on. It takes time to grieve for it. It takes time to heal. While you go through this process if that is the direction you must choose, try to keep busy. Try to occupy you thoughts and your actions with other things. This is what I am doing. I went with my son on my first canoe trip in years. Peaceful on the Peace river. Each day I try to remember that not every relationship is meant to be forever. Be good to yourself. I will keep you in my thoughts and prayers. ginnie:hug:

mg neck prob 05-09-2013 08:46 AM

Quote:

Originally Posted by takinxanax (Post 981918)
I need to stop sounding and feeling like a victim!

Hi TAK!

I get why you said this ----but you feel this way because you tried very hard and so long to make it work. His cognotive skills and emotional responses are not there to be part of any normal relationship. Which has made you feel isolated and alone and depressed for a very longtime. Don't beat yourself up over it ---give yourself time. Im glad to hear you reached out to a support group its really hard when your battling these types of situations in your head alone. It cause all of us at times self doubt everything. However--- something happens when you even just say the words to others---its almost healing for you. It helps you validate your feelings and thoughts. Im glad to read your taking postive steps for yourself.:D

JoanieP 01-07-2014 08:08 AM

Such A Blessing...thank you for this...
 
Quote:

Originally Posted by Mark56 (Post 950377)
The human condition is well fashioned from personal perceptions brimming with grief and loss. I remember from my youth seeing my Grandpa, or at least his body, lying in a coffin on the evening of the visitation after we had torn across country in the Chevy to be with my mother's very large farming family. How could he be dead? I love him!!!!! I cried so many tears, so many tears.....

A childhood introduction to grief and loss up close and personal is a stark beginning to this episode of existence we refer to as life. Wondering how could he be gone, where did he go, what about Grandma, will I wind up there soon, and is it awful lying in a coffin thus- are questions which ran on a loop through my infantile cerebrum as clear liquid, salty, and which made my eyes burn, pour profusely down my cheeks. I felt ALL ALONE that night, all alone, in a room overfilled with people as my Grandpa lay silently just there. Not out of reach at all. And hadn't it only been a few months ago he had visited us in Colorado and he and I gathered blue bells to hold for a photo op while our alternate hands held large and very COLD snow balls. Tht photo is etched into the album of my mind, always ready to replay at a momentary command. My Grandpa.

Not long in life terms later..... maybe seven years or so, my absolute favorite cousin passed from a car wreck on I-70 driving his favorite Chevy Belair. His speed was high, so I am told. The results produced a closed casket affair. Me? Well, I was not allowed to attend, because my mom wanted the time to be with her sisters, and since I was a boy.... well, it did not suit for me to have been so shaken up. Not a manly thing, that. Grief. Chapter Two.

Three more grandparents in a row passed through the years, and as I attained greater age, wealth, and maturity I could take hold of the reins and attend to situations confering love and blessing on those who had loved me BEFORE they passed.... you know, being aware of their enfeebling health in advance of that long awaited appointment with mortality. I could leave on a jet plane and very quickly be at their side sharing my love of them. This I did, wanting each to know of their impact on my life and the joy I gained from their presence..... in doing this, I seemed to gain overwhelming peace as the moments of their passing came, then blew into the detritus of history as leaves along a deserted country road. So glad I took time for those very special people IN ADVANCE.

Almost two years ago now.... though there had been a good many more passings in between, our first grandchild, a little girl- Lilly her given name- passed through our lives as a lit match, especially the paper kind, rushes on toward its terminal extinguishment. She had developed with an awful genetic mishap in formation; one of those, who would have guessed kind of happenings. She came stillborn. I bawled as my insides melted then poured out not unlike the sorrow I had felt as a child when Grandpa, my flower gathering friend, passed. Lilly was here, but not here, we held her fleetingly so the sterility of hospital protocol might rapidly thereafter sweep in to whisk away remains..... simple that, the word remains. A little life prepares us for unparalleled joy, is swept away, and there are merely REMAINS where only a couple of weeks before we had known there was a kicking baby, felt still in mama's tummy. Sorrow without end in sight, the supply seemingly "tacky restaurant" style unlimited refills. The well of sorrows was creating a flood.

Far more recently, I learn last night with my family my Dad has untreatable inoperable cancer. Were he physically healthier we might be thinking in terms of treatment. Not so here.

Dad has that Alzheimers bug. You know the one.... many fear it so badly, they shun families affected by it for fear, seemingly, of contracting a non-infectious disease. Shunning. Shame. The really good stuff of which our society which comes together to spend millions following a popular cause or political gnat turns on a dime to pour separation, shame, indignance, and yes shunning upon folks who bear the calamity of something as insidious as Alzheimers.

Grief. Loss. I definitely felt Grief and Loss when, three years ago, Dad no longer remember I existed. For me, THAT was the day he died. In the meantime, the operating shell of his body continued to perk along. Sure, there were the haltingly embarassing moments of Dad coming outside to see family members off after a visit. He was attired in one of Mom's dresses. Seems he thought it was his bathrobe........ recently equipped with a back zipper. And, he who was a smart fellow engineering wise now polices the lawn of the family home for fallen leaves. It sounds pretty good, except upon realization he putters about the lawn with trashbag in hand picking ONE LEAF at a time from the grass to place it gently into the bag. This is not the person who was my Dad.

Cancer. Used to be that was feared more than Alzheimers. Not so now. Stir them up in the same body, and a rapidly terminal situation is at hand.

Last night, after learning of Dad's terminal illness on top of his terminal illness I sat and remain totally numb. The man I knew as Dad passed mentally three years ago. His body lingers. Lingering will now be accelerated to a finish line. I did not feel like crying. I worked through much grief and loss when Dad mentally died.

Now we wait.

Time will reveal the toll the blended diseases will exact upon my Dad. Will I cry? Are my tears all spent from grieving his loss years earlier? That broke my heart. This, I see as a release of Dad finally from the prison of mental morbidity in which he has been trapped these many years. A blessing as it were.

This road of grief and loss is now far too familiar. The losses have been far more numerous than detailed in this post. The road is one I do not like so much and it has potholes, cracked pavement, and the bridges are not so nice anymore. Familiarity is breeding a sense of discontent not complacence. I hope heaven will bring far more joy to Dad than these most recent of years.

Gonna pull the "car" over to the side of this road just now, I am tired, rest needed. Think I will just turn the key off for a while and sleep.

Grief and Loss consume my strength.
Even so, I am blessed,
mark56:grouphug:

Hello, Mark,

I know that this thread is almost a year old, but I am new here, and started reading some different threads...this one...is so very "special" and I needed to read it...I know you Believe...He takes us where we need to go...

I also experienced much of the same in my life concerning the loss and grief of many loved ones. The first was my mother who died from suicide when I was 9 years old. I did not experience the first coffin or even the grave yard, just a family meeting after her burial at my great Aunt's house. Which was full of "nasty" speaking of my mother's being in "Hell" because she had killed herself. That is the reason my father did not have us, my brothers and I attend the services...he was trying to protect us from this unspeakable pain.

Actually, I thought that for some reason, people had somehow lied to me and I looked for my mother many years, thinking I would find her. Every store, every street, everywhere...my heart was searching. But of course, she was never to be seen again....

My father remarried and it took a long time to accept my new step-mother...now endearingly I call her... Mom. Several grandparents like yours slipped away, some were step grandparents, some not. I did start to do what you described so well...as I was growing up, I realized this was part of life...this was where God would open my soul, spirit, and mind.

And then, like your grand-daughter...my own daughter, Gerri Ann, died in my 36th week of pregnancy. Carrying her in my womb knowingly dead was the most difficult time of my life. The Dr. wanted nature to take its course, allowing my body to go into labor on its own to deliver her. After a week...my own brother could not stand it anymore, I was calling him day and night looking for support...my husband at the time locked himself away...unreachable...my brother called the Dr. and my induced labor was scheduled....I briefly saw her because my own body required surgery immediately due to hemorage...and then a couple of days later after her autopsy which revealed nothing...I went to the mortuary while my babies milk was still dripping...and dripping...and then a few months later, my last living grandmother died...

About 6 years later, my father was killed in a car accident on his birthday. Everything stopped...I could not move...I dropped the phone when my brother told me...and I cried and prayed. Were he and my mother now together again? I prayed to know this for many years...I envisioned my mother in a rocking chair in Heaven and holding my little girl with my father beside them.

And then...my sister...died at age 53 from a terrible reaction to her third attempt of tissue being applied after her third degree burns from a house fire. This one was very different to me...different because I had been going through the possibility of having a brain tumor called an acoustic neuroma..and she and I shared our faith and love together...little did I know it would be her time to go...not mine.

A year later...my brother, died of a sudden cardiac arrest at age 50 on Thanksgiving Day. He and I were like twins, only 11 months apart, so this one burned a "hole in my heart". By faith, and continuing hope to see him again, I endured and am still working through this...allowing the hole in my heart to heal but still knowing that the scar would remain.

And now...and now...the Lord has given me a gift!! I recently had a brain tumor for real this time...and a craniotomy to surgically remove it...and in that process I had a Near Death Experience....and saw them...and spoke with them...and then the Lord told me I had to return..."It was not my time." I shared this with everyone at the hospital...everyone..to include the surgeon who prayed with me before my surgery, the nurses, my husband, my children...and now you. Heaven is for real...and YES, my mother is there as well...she had suffered from a medical condition that caused her suicide...God forgave her as He is willing to forgive and love us all...Jesus made sure I knew this...to share!

I know this is a long sharing...but hoping it Blesses those who need it.
Joanie

ginnie 01-07-2014 08:34 AM

Hi Joanie and Mark
 
I re-read the posts. Grief and the human condition does come to us all. It seems that many lives if not all, are in stages of grief. Oh the tears we cry, for those that gone, and for those of us who remain. I don't think I could have gotten through some of it without my faith. Our own mortality steps ever quicker toward Our Father in Heaven.
Thank you for the blessings of these posts. It reminds me we are all part of this human family. Our destination isn't of this world but of the next. Hug those you love everyone, give an extra I LOVE YOU. Take the time with your parents and loved ones to squeeze each moment you have with them. That is what I am trying to do now with my tiny family that is left. I tell my son daily, my grown man how much he means to me. I pray for a family member who shuns me. I pray for my grandson I never got to see. :hug: ginnie

Mark56 01-07-2014 09:21 AM

Dear Joanie
 
I am reminded of "Glimpses of Truth Thou hast for me" from a lyrical line which allows us to know such a wonderful key is placed into our hands. You highlight for all of us the underscore to all human existence.....; namely, God's embrace is known to all who will have it...... even hung on a cross on a hill in a refuse dump because God IS to all and everywhere AVAILABLE.

Your experience brought crystalline to your thoughts God's love and forgiveness transcend our own frail human capacity to live love completely. You have glimpsed the truth of your Mom holding your baby as your Father stands nearby. How beautiful a living moment of complete love realized at the hands of ABBA God.

How Beautiful......
How Beautiful is the body of Christ.....
I cling fast to the body which so exudes love and peace
which brings forth to each who will hear AND listen
knowing the stillness of calm and green grass
in the garden with the Lord.

Thank you so much, Joanie, for sharing in such a loving way,
You led us to drink once more this day from the everspringing well
of
Love,
and Blessing,
My prayers are with you,

Mark56 :hug: :grouphug: :circlelove:

Mark56 01-07-2014 09:23 AM

Hi Ginnie
 
Thank you for adding your precious perspective to the thoughts here expressed. I am so glad you have, as I have known, the love of your family in the many life trials you have and continue to face.

You are beautiful in your grace, my friend,
Mark56 :hug:

eva5667faliure 01-10-2014 08:46 AM

Quote:

Originally Posted by JoanieP (Post 1041954)
Hello, Mark,

I know that this thread is almost a year old, but I am new here, and started reading some different threads...this one...is so very "special" and I needed to read it...I know you Believe...He takes us where we need to go...

I also experienced much of the same in my life concerning the loss and grief of many loved ones. The first was my mother who died from suicide when I was 9 years old. I did not experience the first coffin or even the grave yard, just a family meeting after her burial at my great Aunt's house. Which was full of "nasty" speaking of my mother's being in "Hell" because she had killed herself. That is the reason my father did not have us, my brothers and I attend the services...he was trying to protect us from this unspeakable pain.

Actually, I thought that for some reason, people had somehow lied to me and I looked for my mother many years, thinking I would find her. Every store, every street, everywhere...my heart was searching. But of course, she was never to be seen again....

My father remarried and it took a long time to accept my new step-mother...now endearingly I call her... Mom. Several grandparents like yours slipped away, some were step grandparents, some not. I did start to do what you described so well...as I was growing up, I realized this was part of life...this was where God would open my soul, spirit, and mind.

And then, like your grand-daughter...my own daughter, Gerri Ann, died in my 36th week of pregnancy. Carrying her in my womb knowingly dead was the most difficult time of my life. The Dr. wanted nature to take its course, allowing my body to go into labor on its own to deliver her. After a week...my own brother could not stand it anymore, I was calling him day and night looking for support...my husband at the time locked himself away...unreachable...my brother called the Dr. and my induced labor was scheduled....I briefly saw her because my own body required surgery immediately due to hemorage...and then a couple of days later after her autopsy which revealed nothing...I went to the mortuary while my babies milk was still dripping...and dripping...and then a few months later, my last living grandmother died...

About 6 years later, my father was killed in a car accident on his birthday. Everything stopped...I could not move...I dropped the phone when my brother told me...and I cried and prayed. Were he and my mother now together again? I prayed to know this for many years...I envisioned my mother in a rocking chair in Heaven and holding my little girl with my father beside them.

And then...my sister...died at age 53 from a terrible reaction to her third attempt of tissue being applied after her third degree burns from a house fire. This one was very different to me...different because I had been going through the possibility of having a brain tumor called an acoustic neuroma..and she and I shared our faith and love together...little did I know it would be her time to go...not mine.

A year later...my brother, died of a sudden cardiac arrest at age 50 on Thanksgiving Day. He and I were like twins, only 11 months apart, so this one burned a "hole in my heart". By faith, and continuing hope to see him again, I endured and am still working through this...allowing the hole in my heart to heal but still knowing that the scar would remain.

And now...and now...the Lord has given me a gift!! I recently had a brain tumor for real this time...and a craniotomy to surgically remove it...and in that process I had a Near Death Experience....and saw them...and spoke with them...and then the Lord told me I had to return..."It was not my time." I shared this with everyone at the hospital...everyone..to include the surgeon who prayed with me before my surgery, the nurses, my husband, my children...and now you. Heaven is for real...and YES, my mother is there as well...she had suffered from a medical condition that caused her suicide...God forgave her as He is willing to forgive and love us all...Jesus made sure I knew this...to share!

I know this is a long sharing...but hoping it Blesses those who need it.
Joanie

may i say thank you for sharing
as your road is as heavy as your cross
you have certainly blessed me in many
very important circumstances
a strong soul in spirit
you are strong in you affirmation
to your family passing
may you rest in ease and truly
no how important when sharing
you heal
i relate
i pray your stay be filled with
JOY AND HAPPINESS

eva5667faliure 02-09-2014 01:34 PM

Quote:

Originally Posted by ginnie (Post 1041961)
I re-read the posts. Grief and the human condition does come to us all. It seems that many lives if not all, are in stages of grief. Oh the tears we cry, for those that gone, and for those of us who remain. I don't think I could have gotten through some of it without my faith. Our own mortality steps ever quicker toward Our Father in Heaven.
Thank you for the blessings of these posts. It reminds me we are all part of this human family. Our destination isn't of this world but of the next. Hug those you love everyone, give an extra I LOVE YOU. Take the time with your parents and loved ones to squeeze each moment you have with them. That is what I am trying to do now with my tiny family that is left. I tell my son daily, my grown man how much he means to me. I pray for a family member who shuns me. I pray for my grandson I never got to see. :hug: ginnie

my ginnine
i so understand
i continue to mother
i allowed my daughter to have this weekend with her and she is my child that i have to remind
i am a mimma to her
i am not suppose to be a mother
and i know you understand what
i am trying to get across
so painful

music-in-me 05-23-2014 08:23 PM

Quote:

Originally Posted by Mark56 (Post 950377)
The human condition is well fashioned from personal perceptions brimming with grief and loss. I remember from my youth seeing my Grandpa, or at least his body, lying in a coffin on the evening of the visitation after we had torn across country in the Chevy to be with my mother's very large farming family. How could he be dead? I love him!!!!! I cried so many tears, so many tears.....

A childhood introduction to grief and loss up close and personal is a stark beginning to this episode of existence we refer to as life. Wondering how could he be gone, where did he go, what about Grandma, will I wind up there soon, and is it awful lying in a coffin thus- are questions which ran on a loop through my infantile cerebrum as clear liquid, salty, and which made my eyes burn, pour profusely down my cheeks. I felt ALL ALONE that night, all alone, in a room overfilled with people as my Grandpa lay silently just there. Not out of reach at all. And hadn't it only been a few months ago he had visited us in Colorado and he and I gathered blue bells to hold for a photo op while our alternate hands held large and very COLD snow balls. Tht photo is etched into the album of my mind, always ready to replay at a momentary command. My Grandpa.

Not long in life terms later..... maybe seven years or so, my absolute favorite cousin passed from a car wreck on I-70 driving his favorite Chevy Belair. His speed was high, so I am told. The results produced a closed casket affair. Me? Well, I was not allowed to attend, because my mom wanted the time to be with her sisters, and since I was a boy.... well, it did not suit for me to have been so shaken up. Not a manly thing, that. Grief. Chapter Two.

Three more grandparents in a row passed through the years, and as I attained greater age, wealth, and maturity I could take hold of the reins and attend to situations confering love and blessing on those who had loved me BEFORE they passed.... you know, being aware of their enfeebling health in advance of that long awaited appointment with mortality. I could leave on a jet plane and very quickly be at their side sharing my love of them. This I did, wanting each to know of their impact on my life and the joy I gained from their presence..... in doing this, I seemed to gain overwhelming peace as the moments of their passing came, then blew into the detritus of history as leaves along a deserted country road. So glad I took time for those very special people IN ADVANCE.

Almost two years ago now.... though there had been a good many more passings in between, our first grandchild, a little girl- Lilly her given name- passed through our lives as a lit match, especially the paper kind, rushes on toward its terminal extinguishment. She had developed with an awful genetic mishap in formation; one of those, who would have guessed kind of happenings. She came stillborn. I bawled as my insides melted then poured out not unlike the sorrow I had felt as a child when Grandpa, my flower gathering friend, passed. Lilly was here, but not here, we held her fleetingly so the sterility of hospital protocol might rapidly thereafter sweep in to whisk away remains..... simple that, the word remains. A little life prepares us for unparalleled joy, is swept away, and there are merely REMAINS where only a couple of weeks before we had known there was a kicking baby, felt still in mama's tummy. Sorrow without end in sight, the supply seemingly "tacky restaurant" style unlimited refills. The well of sorrows was creating a flood.

Far more recently, I learn last night with my family my Dad has untreatable inoperable cancer. Were he physically healthier we might be thinking in terms of treatment. Not so here.

Dad has that Alzheimers bug. You know the one.... many fear it so badly, they shun families affected by it for fear, seemingly, of contracting a non-infectious disease. Shunning. Shame. The really good stuff of which our society which comes together to spend millions following a popular cause or political gnat turns on a dime to pour separation, shame, indignance, and yes shunning upon folks who bear the calamity of something as insidious as Alzheimers.

Grief. Loss. I definitely felt Grief and Loss when, three years ago, Dad no longer remember I existed. For me, THAT was the day he died. In the meantime, the operating shell of his body continued to perk along. Sure, there were the haltingly embarassing moments of Dad coming outside to see family members off after a visit. He was attired in one of Mom's dresses. Seems he thought it was his bathrobe........ recently equipped with a back zipper. And, he who was a smart fellow engineering wise now polices the lawn of the family home for fallen leaves. It sounds pretty good, except upon realization he putters about the lawn with trashbag in hand picking ONE LEAF at a time from the grass to place it gently into the bag. This is not the person who was my Dad.

Cancer. Used to be that was feared more than Alzheimers. Not so now. Stir them up in the same body, and a rapidly terminal situation is at hand.

Last night, after learning of Dad's terminal illness on top of his terminal illness I sat and remain totally numb. The man I knew as Dad passed mentally three years ago. His body lingers. Lingering will now be accelerated to a finish line. I did not feel like crying. I worked through much grief and loss when Dad mentally died.

Now we wait.

Time will reveal the toll the blended diseases will exact upon my Dad. Will I cry? Are my tears all spent from grieving his loss years earlier? That broke my heart. This, I see as a release of Dad finally from the prison of mental morbidity in which he has been trapped these many years. A blessing as it were.

This road of grief and loss is now far too familiar. The losses have been far more numerous than detailed in this post. The road is one I do not like so much and it has potholes, cracked pavement, and the bridges are not so nice anymore. Familiarity is breeding a sense of discontent not complacence. I hope heaven will bring far more joy to Dad than these most recent of years.

Gonna pull the "car" over to the side of this road just now, I am tired, rest needed. Think I will just turn the key off for a while and sleep.

Grief and Loss consume my strength.
Even so, I am blessed,
mark56:grouphug:

Dear Mark,

I just lost my Mother-in-law today, after 3+ years of slowly and painfully losing her to Alzheimers disease. She left this world within 2 weeks of suddenly becoming unable to walk, eat, or drink. We had just celebrated our birthdays together at the end of April. While she no longer could hold a conversation or appreciate her card and gifts, you could still see she was happy to have us around her.

I am saddened, but relieved at her passing. Her quality of life had diminished so much, she was barely recognizable to us anymore. As we went through pictures of her before the Alzheimer's took hold of her, you could see that spark in her eyes. Only rarely did you see that spark before her death; mostly tears and fear as she failed to understand what was happening around her.

I loved my mother-in-law like my own birth mother. In fact, I have spent more time with her than my own birth mother, since I moved away from my family to be with my husband's family just after we married. She will be forever remembered for her gracious, loving spirit. And even though Alzheimer's robbed her of those precious qualities towards the end, today her spirit was felt and remembered once again with stories we shared around the dinner table, her favorite place to be with her family all gathered around her. I look forward to joining her at the table in Heaven, where there will be "no more death ,nor sorrow, nor crying and no more pain." Please take care, M-i-m

Living_Dazed 05-27-2014 02:57 AM

Music in Me,

I'm so very sorry for your loss.

Jace

Vowel Lady 08-03-2014 11:10 AM

Mark...so very touching. So very sorry for your grief.

And condolences to everyone here who is grieving.

Ger715 .... Good for you for doing what your instincts are telling you is the right thing to do for you. If you haven't done so already, you might want to check into a website called Chrisbeatcancer. It is fabulous. He had surgery and no chemo or radiation, did a clean diet and supplements and it's been something like ten years (not sure exactly) and he (Chris) is doing great!

Click here...great stuff
http://www.chrisbeatcancer.com

ger715 08-04-2014 07:28 PM

Quote:

Originally Posted by Vowel Lady (Post 1086902)
Mark...so very touching. So very sorry for your grief.

And condolences to everyone here who is grieving.


Ger715 .... Good for you for doing what your instincts are telling you is the right thing to do for you. If you haven't done so already, you might want to check into a website called Chrisbeatcancer. It is fabulous. He had surgery and no chemo or radiation, did a clean diet and supplements and it's been something like ten years (not sure exactly) and he (Chris) is doing great!

Click here...great stuff
http://www.chrisbeatcancer.com



Thank you for your PM which alerted me to your response. Very much appreciated. Will check the above out.

Although my cancer was rectal; 2 ft. of colon was removed along with retum; but muscle in tack so did not require a colostomy. High doses of narcotic meds for my PN has caused nasty constipation requiring daily doses of miralax etc. to keep things moving. Things not as they should be there;, scar tissue, etc., causing added pain.

Had a colonoscopy about three months ago. Just one non-cancerous polyp. Otherwise colon is okay.

Not sure what lies ahead; but am really looking forward to being called "Home".



Gerry

ginnie 08-05-2014 05:58 AM

Hello
 
I am so very sorry for your loss. Grief is the great equalizer in this life. At some point it touches us all. I will keep you in my thoughts and prayers. ginnie


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