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seishin 01-25-2013 01:02 PM

MG Reading List
 
If you've found any particular books helpful & informative about MG, I'd like recommendations on what to read. Annie, has your book been published yet?

Stellatum 01-25-2013 01:31 PM

I'll offer my editing and proofreading services pro bono when your manuscript's ready!

Abby

AnnieB3 01-26-2013 09:40 PM

Seishin, There are a lot of good MG resources out there. A good technical book is "Neuromuscular Junction Disorders: Diagnosis and Treatment" by Dr. Meriggioli, Dr. Howard and Dr. Harper. It covers not only MG but CMS and LEMS.

I'm nearly ready to put my book "out there" but have a couple things to do before that happens. It's heavy with illustrations and photos, so it's not been an easy task. It is not an "MG book," however, nor is it a self-help book. It's a book about my own doctoring experiences. So it really isn't a book for an MGer to look to for any hard, cold MG facts. Sure, I do "mention" a neurologist or two, or twelve, and I'm pretty sure I say a few things about MG, but it's more about how a patient needs to be aware of what can go wrong - and right - with doctoring. :cool: AND how "we" can all try to make that process better.

Thanks again, Abby. My Dad was an English teacher and I couldn't afford a professional proofreader. So I made the decision a few months ago that what I put together was good enough. Besides, I take a lot of liberty with the English language in the book. I'm quite sure there are people who won't feel it's good and will make sure they give my book a "dislike" or "thumbs down" or any other mean thing our Internet society has produced to pour hate towards people. But I don't care. They were my experiences, they're true and they're not open for debate. Let them try to debate it with the daughter of an award-winning debate coach. ;) It'll be a one-way conversation anyway, since speaking is not something I can do for long.

There are other resources out there. A good search will show a bunch of MG books. I think it would be great if a neurologist (a nice, open-minded one) and a patient would write one together. Doctors don't have a clue what it is to live with MG and we patients don't have a clue what it's like to be a doctor. It would make for a well-balanced book.

:hug:
Annie


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