crps
 

My name is David and i was diagnosed with rsd/crps almost 3 years ago. It all began with a misplaced step from a really high step that started it all. I was sent to a ortho doctor who thought it might be a severe sprain so boot was applied for 8 weeks with no results. After that a special brace was applied to left foot for a few more weeks with no results. Shortly thereafter a cast was applied for 8 weeks with no results. After a 3rd MRI the doctor found the tare in a tendon that was shredded by this point.

After a visit to an ortho surgeon they removed the tendon and the pain was worse than before.Within a month it was overwhelming. The doctor figured the nerves were damaged in my left foot so another surgery was scheduled to remove my nerves on left side of foot. After that the pain never left my foot. My doctors tried lidocaine shots, tens units, spinal shots (they hurt) and numerous other things. In December 2011 after a trial i was fitted with a spinal stimulator which brought my pain from a 10 to a 5 i run it constantly. With this battle i have been hospitalized 2 times for nervous breakdowns and see a phsychiatrist on a regular basis.

The mental toll is worse than i ever imagined. I am currently on Mobic, Hydrocodeine, Ambilify, Prozac, Temazapan, and i also have the cream that you rub on, it hurts to rub it on, but relief is good. I have done this all thru workers comp and it has been a HORRIBLE struggle! The big problem is the burning pain and how cold my left calf and foot get. No one understands the pain because i walk normal although I cant stand on my feet for very long without needing a rest the pain is HORRIBLE. Does this Ever go away? My right foot has the same symptoms not as severe tho. Thanks for reading my vent i have so needed a forum like this. Prayers for all.:confused:

David,

Welcome to Neurotalk, I also have rsd (since 2009) it is not an easy road by far.

Below is a the link to the crps website and the stimulator website:

We are all family in these groups so feel free to post a thread, rant, rave, or just listen. We learn from each other.

http://neurotalk.psychcentral.com/fo...aysprune=&f=21

http://neurotalk.psychcentral.com/forum118.html

good luck and look forward to talking with you more.

Thank you for your post. The sites were so helpful. Right now im involved with a great workers comp attorney that is going after disability and mental disability. I would gladly trade it all to get rid of this disease. Im new to this site but having people that suffer the same way makes me feel welcomed. Thanks alot.

Great to meet you!!
 

David,

:Wave-Hello: It is great to have you come and be with us. You will fine a great number of dear friends to listen when you are in need of ears. You will find out we are supportive and relaxing place.

Please keep us up to date on your situation. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you. :smileypray:

Hi,

You are not alone here.

There's so much information here, it's amazing.

Just take your topi me and look around.

Ask if you encounter problems getting around the forums.

I pray you find relief soon.

David

It would be best to post your experience and ask your questions on the CRPS specific forum. It is quite active and people will all chip in with their experiences and suggestions.

It's a miserable condition. I've had it for five and a half years and it has been utterly life changing for me. I wish I could say that your pain is likely to go away but I think you probably already know that its likely you will be managing your pain for the long term. I know that I have no expectation of remission but my particular symptom profile is known to have very low rates of remission with high rates of movement disorders. I have struggled with depression since my diagnosis too - something I certainly didn't have any experience of prior to my diagnosis.

You are in good company so please do post on the CRPS board and you will be made welcome.

crps
 

David, I'm glad you found this forum too. You will find much comfort and informative information here. We all need support dealing with this monster. I still remember the day I was diagnosed in 2002 (5 years after the 'event') It was like the Dr. was speaking in a different language. but it soon became crystal clear when he gave me pages and pages of information on the disorder.
Keep posting and let us know how you are doing. loretta