Seizures?
 

Anyone have seizures or any type as a complication of concussion or along with other PCS symptoms?

I am going to ANOTHER doctor tomorrow to try to figure this out.

Remember Mark when I said I wake gasping for air (no previous issues before injury) and with throwing ideas around it was brought up that it might be a sleep apnea thing... And apneas can cause seizures while sleeping... I did bring it up to my doctor but it was brushed aside.

Also brushed aside was this: the burnt smell episode was during sleep, about 2 weeks ago. Accompanied by incredible pain and confusion, and later that day extreme exhaustion, troubles getting actual words out (not slurring or stuttering like usual, but actual trouble making sounds), a metal taste in mouth, and a space of 3 hours just unaccounted for, dazed on my couch, felt like 5 minutes.

Ok well another episode last night... This time I woke with my jaw clenched so tight and my eyes open like saucers, drooling out the left side of my mouth... With incredible head and jaw pain. I sat up and couldn't open my mouth and I don't know how long it took before I finally recall getting some water to drink. Metal taste in throat. Had terrible time sleeping with the ache in my jaw. No prior history of jaw clenching or TMJ problems, jaw doesn't make funny sounds, just aches because of that feeling of having a "Charlie horse" cramp.

Today speech was the same as the burnt smell episode. Awful. Also suffered extreme muscular exhaustion so I didn't even get out of bed until 11am though I'd been awake for hours.

Not googling, and not particularly anxious about this. Just wondering if these kinds of episodes have ever happened to anyone here?

Btw I'm on "drug free" recovery thus far, just taking Tylenol.

I'd be glad if doctor would at least do a test but I suspect it will be described and discarded again. I keep living so it's obviously not going to kill me. Lol

You know I have lol!The metal burning smells are still trying to be figured out.The seizures I did have post traumatic seizures so I am taking valium.And the jaw yes I went to jaw TMJ MD last April and had too much inflammation so I am going in Few weeks to see what is going to go on with that....before I could not open my mouth and he had to give me steroids and would not see me till after I seen a Neuro....I'll be the lab rat on the jaw thing and let a few people know....but if you could get a MRI of your neck and if there is bulging in C1 or C2...If a cortisone shot is available it will loosen the jaw and face....that is what my physiatrist and physical therapist told me..... :hug:

MsRrio,

I take gabapentin (Neurontin) before bed to reduce the jaw clenching. I also am very careful with neck position due to C-1 inflammation risks that lead to my Central Sleep Apnea.

Can your husband stay up some night to observe your breathing? My wife did one night and counted my apnea episodes. I stopped breathing 16 times in 1 hour. Most sleep apnea specialists have very little understanding of Central Apnea. The autonomic nerves that control heart beat and breathing are in the C-1 area. When they are compressed by nearby inflammation, the apnea can be a problem.

I have never been able to get a doctor to pay attention to my problems. I have to do my own work at reducing my CSA.

New doc today. Same song.

"Could be migraine aura" .... no attention paid to the sleep apnea thing at all.

How does one learn to cope with being the invisible unheard patient for the rest of time? (Unless I spontaneously heal someday... Lol... Sigh)

:Bang-Head:

ugh another bad doc appt....
 

I know how frustrating it is. I've been through it all before with my fibromyalgia, many doctors with no help or belief, and yet I'm still frustrated every time it happens again! I'm sorry to hear you didn't get any help. It is however quite likely that your last statement is true... you will probably spontaneously heal one day! It probably won't be tomorrow ;) but one day! That, and the help of this wonderful forum will have to be enough to keep us sane!

I hope those events were temporary and you won't have them anymore. :hug:

CC

Thanks cc!

One thing this doctor did say was that I could take Aleve for the pain. Aleve is 220mg naproxen in OTC strength in Canada, for those who don't know.

I've been told up to this point that I could only take Tylenol.

So.... does anyone else take NSAIDs? (Non steroidal anti inflammatory drugs)

Good bad? Ugly? Should I try?

I take aleve two tabs in morning sometimes two twelve hours later. When headaches or back/neck pain are bad I take oxycodone. BTW I have had seizures at night. I was totally unaware most of the time. My wife witnessed it. Once I woke up with bilateral seizures in my hands and arms. The seizures I had subsided with time so if I am having them I no longer notice. However I have developed a horrendous snoring at times. It wakes both my wife and myself. Pre injury I did not have these issues.