New member needing disability help
 

Hi everyone, :cool:
I am very depressed after having been denied disability at the alj level. I guess I will file a new claim. I cannot believe I was denied. I am barely able to bath and dress myself. I have had chronic pain since 2006. I had liver and kidney failure from an accidental overdose of Tylenol. I was hit on the freeway in 2006 and have had back, neck and pain that goes down my left leg. Disability says I have not seen enough doctors for how bad I am hurt. How can I with no money? I have a hard time figuring out how to get myself help. I just went to the best neurologist/movement disorder specialist in my state and was diagnosed with traumatic brain injury/post concussive syndrome, REM sleep behavior disorder, nocturnal frontal lobe epilepsy, chronic migraines. Disability did not see this so I am hoping it will help. If anyone has an encouraging word I could sure use one. I hope everyone is having a good day. I have been reading on here for a while now. My heart goes out to you all. :hug:

dear brian
do file again
have all documents
you can get your hands on
including all the doctors
and hospital stays with reports
good luck

someone who cares

Hi Hon. Welcome to Neurotalk

Please go to this forum:

http://neurotalk.psychcentral.com/forum28.html

It's the Social Security Disability forum.

Post your questions. Someone will surely advise you.

Take care,

Best of Luck. Melody

Thanks to both who gave advise
 

Eva you would be the first to give encouragement to me. I have cried reading about your struggles. What an inspiration you have been to me. Thank you both so much for your reply's. It helped me out a lot. I will try the link you gave. Thanks again. God bless. Hugs to you both. :hug:

Hi...
 

Hey,

So sorry you're having all these health and financial problems. It's very hard to go through these legal procedures.

It is rough these days, to get a favorable decision. And yes, you do have to have medical proof. Sometimes strong meds, if medically indicated, will disable people from the workforce.

Are you also applying for SS disability? If you are, I strongly urge applicants to contact their US Congressperson. Write to them with name, address, ss#, date of birth, short work history, list all medical problems, medications, and how it has disabled you. They can be really helpful.

Hang in there. You just have to do what you have to do for now. It won't always be this way. I have to believe, if you're entitled, it will happen.

Maybe a diary or journal, listing complaints and thoughts for why you can't get it fixed. That's a come of evidence too. Use the pain scale from one to ten, with ten being the worst, to rate your day, or after you do something. Document your activitities. Money concerns can also be shown here, if there's reasons why you can't get help. It would be a challenge to not have ins and need medical attention.

I hope you do get your comp soon.

hi brian patch
 

that sounds awful...can you let me know more about your story? how did you overdose on tylenol? that really concerns me bc i always advocate taking it...could u send me a message?

Greetings!!
 

Brain patch,

:Wave-Hello: It is great to have you come and be with us. You will fine a great number of dear friends to listen when you are in need of ears. You will find out we are supportive and relaxing place.

Please keep us up to date on your situation. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you. :smileypray:

Hello Brain Patch!
 

Welcome Aboard! :hug:

I'm sorry you've been denied. Seems most people ARE denied the first time around, so don't let this bring you down too far. The SSD forum which Melody gave you the link is FULL of good info of do's and don'ts.
I know it takes time, but with the right evidence and a good advocate, you'll have a fighting chance.
My opinion on why they deny the first time is too weed out those who aren't real serious about getting the aide. Course, my logic doesn't really go too far sometimes :rolleyes:.

If depression is getting a hold on you, it's always good to talk about it with others who understand. We have a forum for depression, here's the link to take you there:
http://neurotalk.psychcentral.com/fo...sprune=-1&f=37

It's sure helped me!

It's great to have you here!

Caring,
Rae
:hug:

More info on brain patch
 

I don't know how to work this too well yet so bear with me. I hope this reply shows up. Thank you so much for all the encouragement. I suffered from migraines and hypoglycemia since I was about 17. I have had the REM sleep disorder since I was very young but we did not know that was a problem until my dad was dx with Parkinson's with dementia poss shy-dragers. I passed out many times and hit my head straight back on concrete. Dr. Said due to hypoglycemia. I still pass out at times. I was hit on the freeway from behind in 2006. I was knocked out. Since that time I started having trouble dressing myself, was getting lost trying to get home from work, had slurred speech at times, was not remembering names/faces, forgot how to cook, was not acting appropriately etc. I started on a new med called nerontin and it made me much worse. I could not remember if I took my pills. I have had chronic pain since the MVA in my neck, back, head and down my left leg. I could not remember if I paid car payment, bills etc. i was taking extra strength excederin and lortab all day for pain so I could work. I accidentally overdosed because I could not remember if I took them, kept waking in night in pain thinking it had been hours and taking more. I ended up in hospital with liver and kidney failure. I still have problems from both. This happened in 2009. I have been seeing a pain specialist every 30 to 60 days since that time. He put me on ms contin, phenergan and ambian. I applied for disability in 2009 because I am was bed ridden and still am some days. The other days are minimal functioning. More like couch ridden with a short walk outside or short trip to library etc. My pain Dr. supported my claim. Disability says I have not seen enough doctors or specialists and threw out my dr opinion completely. Accused me of drug seeking. I was able to get into my dads neurologist because I had the same REM sleep disorder and this is considered a precursor to Parkinson's. The neurologist says I don't have enough signs of Parkinson's for the study but diagnosed me with post concussive syndrome manifested by cognitive impairment, chronic pain/fatigue, REM sleep behavior disorder, nocturnal frontal lobe epilepsy, chronic migraine and episodes of syncope. The neurologist said a neuropsychological testing would be helpful to document disability. I am applying for Ssdi and ssi. I am trying to figure out how I can do that. I have a hard time figuring out how to get myself help. Disability says I also show a lack of willingness to try different treatments. That is true because I cannot take muscle relaxers or anti-depressants as it aggravates these sleeping disorders. I took soma and woke up in the psych ward. I took nerontin and woke up in intensive care trauma unit for liver and kidney failure so yeah, I am hesitant to take any medicine that I do not know helps and I can tolerate. Unfortunately, those meds happen to be benzodiazepines and narcotic pain medication. So I am a drug addict in the eyes of social security. I was recently put on clonazepam for the sleep problem. Neurologist says this is only med that helps for that and they need to control it as it is brain damaging me ever time it happens. Not to mention seizures hurt. I think that about covers it. If anyone wants to know anything else or has any words of wisdom or just comfort I am in need. I am a fairly young lady. I am so alone all the time. I have family but they are just beginning to understand about illness with my dad having Parkinson's with dementia. I help with his care more than anyone really cause I understand what it is like to loose memory and cognitive abilities. I have to stop them from yelling at him because they get so frustrated. I had nobody to stop others from treating me bad. Shame on people who see others struggling and act so mean. I am proud to say I never mistreated anyone with illness. I worked for BlueCross and helped many. Thanks again for making me feel welcome and comfortable enough to talk. Sometimes it just means so much if somebody brings you a glass of water. Anyone know what I mean? Love to you all.:grouphug:

Hi Brain Patch and Welcome! Thank you for sharing your 'medical history' and what brought you here to NT. I'm sure you will find so much support, comfort, and personal experience of others that will help you, as well as you sound like a truly compassionate person that has much to offers others.
Hang in there with the SS stuff. Sounds like this neurologist will be a good thing for your re applying. I don't have any experience with SS. (I'm waiting till May when I turn 65 and will get medicare.) I don't have any healthy insurance so 'hear' you when it comes to paying those medical bills.
Besides the new neurologist report for your new application, could you get reports of your hospitals stays from the neurotin and and soma reactions. that will show you trying different meds. Also, a letter stating you can't take the various meds that you react to.
I have always heard they go on documentation, and sounds like you need hospital records and more Doctor documentation. DO NOT GIVE UP
You are dealing with so much and deserve assistance that you have paid into.
Again, welcome. I just happened to see the post, am usually on the RSD forum-another site filled with wonderful compassionate people. loretta:)