Is there any future?
 

Hi,

Im new here. Im a guy 26 years old, spanish and since 2 years ago, or a little bit more, im suffering of very anoying symptoms.

I have to say that 2,5y ago i started with chimiotherapy to cure my hepatitis C, that i got from my dear mum when getting born. The therapy consisted on inyections of Interferon Pegasys, and taking Rivabirina pills. Also as my inmune system went very low, i had some inyections of GCSF to reverse the neutropenia.

During that time i was having a big amount of stress on my shoulders, fighting with the hepatitis c, having big problems with my girlfriend and being not sure about my academic future.
When i was getting to the end of the treatment, and after a night of a lot of stress due to discussions with the girlfriend i woke up next day having strange symptoms.

The symtoms were: diferent sensibility on the left part of the body, lack of concentration, tickling and numbness in the left part of the body, also the face and head, specially on the leg and feet. This was becoming harder and easier to feel when i was sitting down on a chair or just lying on the bed.

This symptoms remain till now. Its already 2 years and im here sitting, writting this and having that feeling on the left leg.

I did a magnetic resonance twice, also twice an electromyography. I have been checked but many doctors, in many situations, done blood analisys. I was taking b12, other kind of vitamins, alpha lipoic acid. I was trying to do sport, to relax, to not drink alcohol at all, to change the diet for one completly out of gluten, suggar and *****. I was taking Lyrica even.

Anything helped.

All the proves i did was ok, i didnt have any clue of something hard as multiple sclerosis or even any kind of sign of having neuropathy, as results of the EMG and MR. Everything was supposed to be ok after the checking so the doctors conclude that the pain was just in my mind.



In my opinion i may have thin fibers neuropathy. But there is not solution for that still.

Does anybody knows if there is any new about the solution of these issues? Any drug in study, any hope for the future?

I cant even concentrate at work, where i have to sit for 10 hours, and im there with pain whole time, feeling sorry for myself.


Greetings,

:)

Hi poselin
 

Welcome to Neuro Talk. Of course there is hope for the future. One thing is to continue to find the doctor who can see the whole picture. Sometimes seeing a number of specialists, they don't always get together to dicuss what is going on with you. You are doing the correct thing with Co A 10 and the suppliments. Please don't allow any doctor just to tell you it is all in your head. I think sometimes they do that when they just don't know what is wrong. If you can see a physiatrist, this is a doctor who specializes in the whole body, pain and all. This is who I see, and there has been marked improvement with alot less medication. Feel free to ask around on the boards for specific problems. There is a forum for PN, Depression, Pain, just about everything you can imagin. You will find support here, and maybe some information on who to go see in your area. You are young, please don't give up. NT will be here for you and so will I. I am F 61 years young, came here much as you looking for help. Again Welcome, I am glad you found this site. ginnie

Hi Poselin,
Welcome to neurotalk! I am sorry that you have to have these problems at such a young age. I didn't get neuropathy until I was in my 40's. I agree with Ginnie do not let a doctor tell you it is all in your head. They do that when they don't have answers. I have been lucky, I never heard that but know many people who have. Was the MRI of your brain? I know you said you have seen many doctors. What type of doctors? Did you see a neurologist? Many people have to keep going to new doctors until they find one that works well with and for them. Don't give up like me you may never be able to find out what caused your neuropathy. Things will get better. There are many people here that may be able to answers your questions and offer you support.