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-   -   new and excited to meet you (https://www.neurotalk.org/multiple-sclerosis/184144-excited-meet.html)

julie4470 02-17-2013 09:05 PM

new and excited to meet you
 
First let me say that I am a limbolander. I have no dx of anything. That would be great news except that I KNOW there is a problem. In fact, I have known for years. Over the years I have mentioned things to my doc here and there. He would explain it away and I would shrug my shoulders and move on. Some of these things have been: vertigo, intense leg pain, anxiety, numbness down right side, incontinence and more. Recently however these things and others have become more intense and more frequent and I can't ignore it anymore. So, went to my GP who listened and did some of the basic neuro tests. He was concerned and sent me for mri and referred me to a neuro. My latest symptoms are right side numbness/tingling. Pain in thighs that feels like icy hot on my legs. Pain and burning on bottoms of feet and face. Balance issues and wide gait. The feeling of water running under my skin down my spine. Episodes of sleep paralysis and on and on! Anyway, had my mri Friday and will get the written report tomorrow. I am afraid it will show something and also afraid it won't. I don't want to have MS or anything else but I also don't want to be dismissed. Can anyone relate?

Blessings2You 02-17-2013 09:45 PM

I sure can relate. Several years ago, when I was seeking a diagnosis, I was crouched in a corner of the kitchen one night sobbing my heart out. I wailed to my husband, "I don't w-w-want MS but there's SOMETHING w-w-wrong with me, and if it isn't MS then I'm c-c-crazy and I don't w-w-want to be c-c-crazy! Waaaaaaah....."

Hang in there. This is a good place--you'll get lots of support. We've been there and we get it! :hug:

TheSleeper 02-17-2013 11:17 PM

Hi, and I can also relate, although I was content with the diagnosis, some of the alternatives seemed a lot worse.

doydie 02-18-2013 01:11 AM

Welcome to the group. Let us know what the MRI shows.

Lynn 02-18-2013 06:19 AM

Wishing you all the best - no matter what, I hope you get some answers soon. Limboland is not a good place to be.

I remember being devasted (that it was MS), relieved (that it wasn't something much worse), terrified (because I didn't know what the future held, and I was pretty messed up MS-wise at that time) and validated (because finally I didn't feel like a hypochondriac - and it explained so much over such a long time) all at once when I got my diagnosis.

I imagine this would sound similar to many others on here - although we are all affected in different ways, and to different degrees.

Please let us know how you get on, and know that there is lots of support here for you.

marion06095 02-18-2013 09:14 AM

Julie, welcome to our little corner of the internet. Whether you have MS or not, you'll find loads of information and coping skills here to help you. You'll also find some of the nicest people around. I come here for information, advice, and comfort from people who really understand.

So, WELCOME. I'm glad you found us. :)

julie4470 02-18-2013 09:44 AM

Thank you guys so much! I am about to go pick up a copy of my mri results. If I am honest, as crazy as it may sound, I hope it shows something. Otherwise, I believe everyone including myself may think I am a nut case. I will post the impressions when I return. Again, thank you so much!

Kitty 02-18-2013 09:45 AM

Welcome to NT, Julie. Like the others have said you'll find understanding and friendship here. MS is such a misunderstood condition mainly because those of us who actually have it don't understand it! Everyone has the same thing and it's different for each of us.

Just join right in on any discussion that interests you. Glad to have you here. :)

SallyC 02-18-2013 10:00 AM

Welcome Julie. Very nice to meet you.:hug:

putterfit 02-18-2013 10:34 AM

Welcome Julie

As strange as it may seem but I wanted the dx of MS because based upon all the information I had concerning my symptoms anything else would have been a short term death sentence.

I was crazy long before MS came along, still looney and I am happy and proud of it. :eek: MS has not taken my sense of humor!


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