NeuroTalk Support Groups

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)

- - Ldn (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/184729-ldn.html)

needhelp13

02-28-2013 11:49 PM

Ldn

How many people are on Low Dose Naltroxin? What are your experiences and what else do you take with it?

Thanks so much,
Mona

CRPStweet

03-01-2013 03:48 AM

Mona - I have been on it for awhile - cannot tell if it helps. I have whole body nerve pain from CRPS. I literally burn from head to toe. It is terrible. I am on c-naltrexone 10mg, 3,300mg gabapentin, 20 mg cymbalta, 60 mg dextromethorphan per day. What is the rest of your CRPS med regime? take care,

needhelp13

03-01-2013 09:35 AM

I am not taking it yet. From the research I have done it can take quite a bit of time to work and I cannot tolerate the pain that long.

This is my list of meds that did not work. Lyrica,Cymbalta,high doses of gabapitin. I am allergic to dilaudid. I am currently taking percocet.

The rsd has spread to my other limb. I am tring to figure out ways to sleep without blankets touching me. This is crazy

CRPStweet

03-02-2013 03:11 AM

I think I have been on LDN since Aug 2012

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