amifampridine / 3,4 Diaminopyridine
 

I tried search on this one, but it can't find anything. (But due to my weird account status, I can't seem to find much anyway).

Has anyone tried 3,4 dap (= Diaminopyridine ) for MG? If you did, please help me and answer this:
What is your experience? Did it help?
Did mestinon help you?
What kind of MG do you have (achr, musk, negative, cms, ....)?

I'm just too scared to try those scary, heavy other meds. I want to try symptomatic stuff first.

I'm curious what the response will be. I thought 3,4 Dap was only given for Lambert-Eaton Myasthenic Syndrome (LEMS).

I will be trying it soon, but I have Lems. I am so hoping for a good result.

I know someone replied to my post about it. I could not find it in the search either, I think due to a parenthesis, but I found the link:
http://neurotalk.psychcentral.com/thread183453-2.html. But I can't get the link or search for it to work. Try the advanced search for post by CAIT24 and the title:how often do you take Mestinon?


It looks like there is a study in Rochester where they are trying it on MG patients.

also:
http://www.ncbi.nlm.nih.gov/pubmed/2992990


kathie