i had a thread on here
 

never mind

Hey Shelly, I'm new here too and have gotten only a few replies. But just scanning the New Posts helps me get through a bad day. I note you also have trigeminal neuralgia. I do too. Sometimes I think that this disease isn't known to a lot of people. Even some of my family memebers ignore me because they don't know what to do or say. Please don't give up! You need to do whatever is right for you. I wish you well. Janet

I know it can be frustrating to get only a few replies when we feel so badly.

Please remember that the forum is just building up and members log on sporadically to read and respond...as they can and are feeling up to it. Still, it can be disheartening.

Don't ever hesitate to PM another member as well...

Also, when feeling upset that it shows several have read, but there are few responses, please remember that as much as 90% of the number that shows read come from visitors checking the site out but can't respond, search engines, or other computer programs generating...they're not real people who can respond. that helps me when I see that number and am desperate for response.

Don't ever hesitate to PM me as well. I live with TN and sometimes do better in PM.

Best to you both.

KD

Shelly how are you holding up lately?
Me having lots of jaw pain ...not face pain or t.n. pain but my jaw been meaning with the angries latley.
you can mail me whenever you want you know... right now i am just dealing and sorta avoid talking about it much and try to do a bunch of other things to keep my mind , thoughts busy with other stuff.
been writing and posting other stuff. hope you are being a warrior and fighting the pain the bad /sad times and recieving lots of things to smile and be happy about. :hug: TO YA SHELLY
Peace Peace
BMW