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melissamosher 03-11-2013 08:54 PM

Frustruated patient
 
I have been on medical leave for a year now, unable to work due to extreme fatigue, blurred vision, dizziness, muscle aches and pains, joint pain, headaches, etc. I have seen two nuerologist, rhumetologist, ear nose and throat doctor, dermatologist, general practioner, opthamologist, and I am sure I am missing some. I have had a lot of blood work done, MRI of the brain (showing abnormalities in the white matter), skeletal x-ray, spinal tap, CT of chest and abdomin. My blood work is all over the place, one time my ANA is elevated then it is normal, my calcium is high, other tests have been abnormal and then return to normal the next time it is tested. I have a skin rash on my arms, legs and trunk. The doctors cannot say definitely that I have MS, but they do not know what is wrong with me. I have recently developed shortness of breath and had a chest x ray and CT which showed some annomolies, rechecking this month. My question is, I guess, does anyone have any suggestions as to what type of doctor I might see next or where I might go to find out if I have an autoimmune disease?

pabb 03-13-2013 06:19 AM

Quote:

Originally Posted by melissamosher (Post 964940)
I have been on medical leave for a year now, unable to work due to extreme fatigue, blurred vision, dizziness, muscle aches and pains, joint pain, headaches, etc. I have seen two nuerologist, rhumetologist, ear nose and throat doctor, dermatologist, general practioner, opthamologist, and I am sure I am missing some. I have had a lot of blood work done, MRI of the brain (showing abnormalities in the white matter), skeletal x-ray, spinal tap, CT of chest and abdomin. My blood work is all over the place, one time my ANA is elevated then it is normal, my calcium is high, other tests have been abnormal and then return to normal the next time it is tested. I have a skin rash on my arms, legs and trunk. The doctors cannot say definitely that I have MS, but they do not know what is wrong with me. I have recently developed shortness of breath and had a chest x ray and CT which showed some annomolies, rechecking this month. My question is, I guess, does anyone have any suggestions as to what type of doctor I might see next or where I might go to find out if I have an autoimmune disease?

What was the results from celiac testing?

melissamosher 03-13-2013 08:57 AM

frustruated patient
 
Quote:

Originally Posted by pabb (Post 965383)
What was the results from celiac testing?

the results for Celiac were negative. When retested my numbers were in the normal range.

pabb 03-14-2013 01:04 PM

Quote:

Originally Posted by melissamosher (Post 965418)
the results for Celiac were negative. When retested my numbers were in the normal range.

Have you tried a gluten free diet? There is a condition called NCGI, Non Celiac Gluten Intolerance. It is becoming recognized even by Dr Fasano.
A 3-6 month trial of TOTAL GLUTEN AVOIDENCE, will tell the tail.

melissamosher 03-18-2013 02:00 PM

Quote:

Originally Posted by pabb (Post 965383)
What was the results from celiac testing?

The next time they tested my blood they both came back in the normal range


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