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-   -   Looking for a Doc in Dayton Ohio (https://www.neurotalk.org/myasthenia-gravis/185324-looking-doc-dayton-ohio.html)

KristiandJohn 03-12-2013 04:59 PM

Looking for a Doc in Dayton Ohio
 
Hello all ,my wife and I have been looking for answers for her for 7 years. I believe she has seronegative MG and we finally got someone to order MuSK antibodies. We have started a trial of Mestinon. But we need someone in or close to Dayton to man up and give us a diagnosis. any recommendations. Thanks, John. PS I am a nurse and paramedic with 20 plus years of experience.

AnnieB3 03-15-2013 11:37 PM

Hi, John and Kristia. Welcome to the forum! I guess it's been a little quiet lately, sorry about that.

I don't know of any experts in OH but sometimes a simple search might help.

http://www.medicinenet.com/myastheni...on-oh_city.htm

I know the Cleveland Clinic is quite a trek but you might get at least diagnostic help there. It might be worth a phone call to see if they know of any MG specialists in your area. You never know until you ask! ;)

I'm really sorry your wife has gone through such an ordeal, although I'm not exactly surprised.

Is there anything else we can help with? If she has MG, there's a lot to learn about it. How is she doing in general? Is the Mestinon helping?

I hope you'll get help, Kristia. It's very hard not knowing what is going on with your body. Hang in there.

:hug:
Annie

KristiandJohn 04-25-2013 11:59 AM

thanks I have done some searching and are heading to OSU next week to see dr Freimer, we shal ask her for a recommendation for follow up in Dayton, my wife is now on mestinon and my request and doing much better.


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