Supplements
 

Well since all my posts are about my dad I figured I would post a pic of him during his recent NYC visit. Anyway like stated before, since about 38 he has been a health nut and exercise fanatic. He asked me if I could find out what the 4-5 top supplements are for PD. Thanks.

i don't know if anyone collects statistics on supplements used by pd'ers but you can look here, can join for free and view their surveys
http://www.patientslikeme.com/

i personally take 1000 I.U. of vitamin D, 1000mcg B-12, combination fish oil capsules, 1/2 multivitamin, 500mg vitamin C twice a day, curcumin, and a few others.

the only supplement i might "feel" any immediate benefit from is american ginseng but not sure if worth the price for the small energy boost i think i'm getting.

a lot of research on the benefits of vitamin e, vitamin c, COQ10 and all found to have no benefit for pd as far as i know, of course have a benefit for general health.

don't think there's any "wow" supplement out there but as with any incurable progressive disease you hope something will help, i think at least 60% of pd'ers when surveyed say they take supplements specifically for pd.

Creatine
 

Creatine is being tested as part of a large Phase III trial (NET-PD LS-1 study) that has been going on since 2007. The study did not end early (like the Coenzyme Q10 study) and it also passed an earlier futility study, so there may be some benefit for PD patients.

Curcurmin
 

What dosages of curcurmin is recommended? I read that curcurmin in turmeric may be more easily absorbed by the body - does any one have experience with this? Also read that curcurmin is potentially neuroprotective but does not easily cross the BBB - can curcurmin be taken with something else to transport across the BBB?

Longvida
 

See http://www.longvida.com/index.php

i buy this product:
http://www.iherb.com/Now-Foods-Bio-C...60-Vcaps/27026
just rolling the dice.

This is a complex question
 

And can not truly be answered with any certainty because we don't fully understand what is happening in compromised cellular respiration in dopaminergic and other high energy neurons. You will hear different opinions based on many ideas. B vitamins should be taken very day, but read all about them by doing a search, the info that you get can be confusing. I take a b12 multi without more than 300 mg of B6' we need all the b vitamins because like vitC the bs are water soluble and you need to replenish them often. But there is evidence that the bs 1 and 6 can interfere with the others absorption and are liver toxic. Antioxidants of any kind are ok, just don't go overboard. 200 mg of Co-Q, up to 500 mg of c per day, circumin, Astaxanthin,resveratrol, etc.,bioflavonoids can't hurt but remember you can get too much of a good thing. Vit A we rarely need except if you are"nt getting enough in your diet and have night vision problems.Vit d is very important for bone health and I take 2000 IU a day in the winter or any day I get no sunlight. Otherwise Vit d is not needed,like in the summer if you get out. Always your supplements with a bit of food to promote absorption and minimize stomach upset. If you don't have a good feeling about your supplement regimen, do more research.this is just a beginning blog about supplements. We do need some, we may need more of others, we may be doing harm with some. You have to dig deep to find what your body is best responding to

PD is such a weird problem and so little is really known about it. In a sense we are modern medicine's dirty little secret that refuses to go away. Things work at first and then don't. As much as we dislike treating symptoms instead of finding a true cure, that is often all we are left with. We are a gutsy bunch, here at NT in particular. Other forums offer some support but wait for someone to save them. Alot of folks here will go down fighting.