NeuroTalk Support Groups - Idiopathic Sensory neuronpathy

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Sue59

04-08-2013 12:35 PM

Idiopathic Sensory neuronpathy

Hello
This is my first time
I've been experiencing my symptoms for over 3 years
I was diagnosed. With idiopathic sensory neuronopathy
It's like my legs are disconnected from my brain
It started as feet felt like asleep but was able to walk and then
Fingertips got numb
And my left leg like sciatic pain
And then not able to walk
My right side mimicked left side
Can't drive and limited walking using walker to get
Around
I have been through all eastern and western med
I'm frustrated
And would like to hear if anyone going thru same
And if so what you have done ???? I'm at my last straw
Sue

Kitt	04-08-2013 01:13 PM

Idiopathic just means that they do not know the cause. Have you had DNA blood testing to try and find the cause? Family history, etc. Hope you find the answer.

Kitt
Charcot-Marie-Tooth disease (CMT).

Darlene

04-09-2013 01:42 AM

Great to meet you!!

http://dl8.glitter-graphics.net/pub/...euu92ottxw.gif

Sue,

:Wave-Hello: It is great to have you come and be with us. You will fine a great number of dear friends to listen when you are in need of ears. Please, just let us know how we can help you out. You will find out we are supportive and relaxing place.

Please keep us up to date on your situation. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you. :smileypray:

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