prednisone course for migranes from PCS
 

Hi everyone,
Just thought I'd document my prednisone course for my daily chronic migranes from PCS. My migrances occur on the left hand side with pain there which sometimes spreads to the right hand side and also the left side of my face feels numb with light sensitivity in the left eye.

I've been putting off the prednisone course but decided to try it today.

So I took 3 tablets 20 mg each this morning which i continue for three days then i take 2 tablets at 20 mg each for 3 days then 1 tab at 20 mg each for 3 days.

Day 1 : don't feel anything different. no side effects so far!

I pray this will somehow make a difference.

Thank you everyone for your support!

My vitamin regimin is quite complicated and I will post it in detail later today.

Thank you again!

update!
Day 2: 3 times 20 mg tablets in the morning with food. Did feel a little better last night and this morning. But still have headache and symptoms and not a huge noticeable improvement. Still taking my vitamin regimen as well.

Thanks everyone.

I did the 5 day and it didnt help me at all hopefully it does for you though!

Day 3
 

Day 3---woke up feeling almost 80%! My symptoms seemed to have decresed by at least 50% over night. But as the day progressed symptoms came back such as a dull burning pain and still light sensitivity in eye. My have seen a mild improvement.

3 times 20 mg prednisone in the morning.

Will begin tapering tomorrow at 2 times 20 mg in the morning.

Day by day have been seeing improvement..but nothing completely dramatic and overnight hopefully will continue to see this improvement trend as I go into Day 4 of this 9 day treatment.

Thanks everyone for the support.

I was on a high dose of prednisone for a month about 2-3 months after my accident, for an allegedly unrelated skin rash. I felt great while I was on the prednisone. Lots of energy, my headaches were better, almost non existent, I really felt damn near normal.

Once I started tapering down the dosage, my symptoms returned and once I was off the prednisone, it was like hitting a brick wall. I slept and slept like I just couldn't get enough.

That said, I sometimes wish for another month long high dose again, just to feel normal again for a little while... to have a break from this hell.

bluehiroko, what is the point of this 9 day treatment? Will this become some sort of long term plan? Please understand I'm not being rude, I'm genuinely curious. Since I already know prednisone works for me, I wonder what they are suggesting your next step would be and whether there's any possibilities for me :)

Starr

I asked my doctor the same thing if Prednisone will just mask the symptoms and then once i'm off it..it will come back? or will it heal it? What exactly does prednisone do?

My neurologist said that she's had success with her past patients in reducing the inflammation and breaking the migrance once and for all, but that it varies for everyone. Prednisone is not safe as a long term treatment. So if I get the headaches once i'm off it then the I will know that the prednisone wouldn't have worked for me and my neurologist said that my next stop would be to go on a low dosage of Evail.

Do you have migranes from PCS too?

Thank you! for your support.

Sounds like maybe the point is to break the migraine cycle. Once it's broken it may not come back or is less likely to become a chronic problem. Did you mean Elavil is what she is going to try next? I've never heard of Evail but I do know some docs prescribe Elavil (amitriptyline) for migraines. I am taking 10mg's of it but it's for sleep. As a nice side effect it also helped with my headaches after the concussion. They are more manageable now and a lower intensity.

I hope you find some relief.

CC

Yes! Thank you! I meant elavil! Any relief at this point i'm grateful for!

Did you also have migraines from PCS? What are your symptoms?

BTW I like your avatar! Thanks for your reply.

My symptoms are listed in my signature. Some are slowly getting better. I am trying to increase my activities and get out of the house a bit but I'm finding it difficult. I did have migraines after my concussion but the elavil changed them to more manageable headaches. I've had maybe only a couple migraines since starting the elavil in November.

I still have pains where I hit my head and headaches but not as extreme as before. I take extra strength tylenols when needed. I'm hoping my eye appt next wewk will answer some more questions and help with headaches.

Try to limit your time on the computer and with tv, etc. If the migraines are bad. You should avoid all stimulation to let your brain rest.

Take care
CC

Day 5 on prednisone now tapering off
2 tab x 20 mg

Still haven't felt any noticeable difference really.

I know this drug has success depending on individuals. I just wonder why. If this drug is supposed to reduce inflammation which is the cause of headaches then why wouldn't it work on some?

Just a thought.

Thanks everyone for your support.