NeuroTalk Support Groups

NeuroTalk Support Groups (https://www.neurotalk.org/)
-   Hydrocephalus (https://www.neurotalk.org/hydrocephalus/)
-   -   Pressure Headaches (https://www.neurotalk.org/hydrocephalus/186752-pressure-headaches.html)

kl2568 04-10-2013 10:14 PM

Pressure Headaches
 
Hi everyone,
I know I haven't posted here in a long time but I have been experiencing morning headaches since Oct.

went to my primary care doctor today and he said that my headaches are probably related to pressure. When I am asleep the pressure will build because I am laying flat and when I wake up that is when the pressure is at its highest but when I am up and about the shunt will drain properly like it should which will alleviate the headache. There is nothing I can do for it. He said if the pressure gets worse where the headache will last longer than a full day or experience vomiting, double or blurred vision with the headache to contact him. So the good news is it isn't anything extremely serious but the bad news is this is something else that there is nothing that can be done about it. Anyone have any advice on this?

Lisa14 04-11-2013 07:49 AM

Welcome back!! My husband just got his shunt in Oct. 2012.So we are new to this. He has pressure headaches all the time, his neurosurgeon said shunt is fine. Do you have a programmable shunt? I would call your neurosurgeon and see what he says maybe need an adjustment?? They have no suggestions for my husband. He just suffers with them daily. I wish you all the luck!!

kl2568 04-12-2013 07:36 PM

Quote:

Originally Posted by Lisa14 (Post 974010)
Welcome back!! My husband just got his shunt in Oct. 2012.So we are new to this. He has pressure headaches all the time, his neurosurgeon said shunt is fine. Do you have a programmable shunt? I would call your neurosurgeon and see what he says maybe need an adjustment?? They have no suggestions for my husband. He just suffers with them daily. I wish you all the luck!!

I do not know if I have a programmable shunt or a fixed one. Still waiting on my records. They have no suggestions for me either since I am not experiencing any other symptoms.

Lisa14 04-13-2013 05:49 AM

I'm so sorry your having the headaches, I know they are terrible. I hope they find something out for you soon.

kl2568 04-14-2013 08:41 PM

Quote:

Originally Posted by Lisa14 (Post 974645)
I'm so sorry your having the headaches, I know they are terrible. I hope they find something out for you soon.

Thanks. I hope this goes away but I have experienced some strange things lately that concerns me before and after my last appointment but since it only lasts a few minutes or happens one day I don't think much of it. Some of these things are blinking many times to make street signs clear, my eyes still burning out of nowhere so when I went to wash them out at the eye wash station I held my breath so I wouldn't accidentally drink it and found I couldn't hold my breath any longer than 3 to 5 seconds before my head would start pounding causing a headache in addition to the burning eyes already causing it, also I had experienced yesterday at my friends house that if I kept my eyes open for 3 to 5 seconds things would be blurry, my pupils were bigger than usual yesterday and i think one was bigger than the other, and this morning I was having double vision but only when looking at my tv. :/

Lisa14 04-15-2013 03:40 AM

Boy I would guess with the vision changes it is Your shunt causing all these problems. I would call Your Neurosurgeon Monday, especially with pupils being different sizes. That doesn't sound good. May suggest You go to ER. Good Luck

kl2568 04-15-2013 06:30 PM

Quote:

Originally Posted by Lisa14 (Post 975164)
Boy I would guess with the vision changes it is Your shunt causing all these problems. I would call Your Neurosurgeon Monday, especially with pupils being different sizes. That doesn't sound good. May suggest You go to ER. Good Luck

Hi Lisa my pupils went back to normal the next day. The thing that I am confused about is when something happens it goes away the next day. Today though I am not sure if it is from eating only chicken broth and tuna(only thing my digestive system can handle right now) but do you know when you get that heavy feeling in the back of your neck and part of the head when someone pulls on your ponytail? I have had that today only no one was pulling on it and also do you know the feeling of chills down your spine? Well I had that at the same time I felt the heaviness (still have it). This was after the tylenol took away my headache I had this morning (most pain in right eye, slight pain in left eye and left part of forehead but then came back later and switched sides. It is gone now (didn't take anything for it the second time) but the heaviness is still here and the head chilld will probably come back.

Lisa14 04-16-2013 07:26 PM

Hey kl ~ Hope you are feeling better today. Dean gets headaches behind his eyes too and has a whooshing feeling up his head. Are you running a temp with the chills? still sounds to me like your shunt, but Dean just got his in Oct. so I'm still new at this. I'm glad your pupils have returned to normal. Did you call the DR?

kl2568 04-16-2013 11:53 PM

Quote:

Originally Posted by Lisa14 (Post 975763)
Hey kl ~ Hope you are feeling better today. Dean gets headaches behind his eyes too and has a whooshing feeling up his head. Are you running a temp with the chills? still sounds to me like your shunt, but Dean just got his in Oct. so I'm still new at this. I'm glad your pupils have returned to normal. Did you call the DR?

hey,
I woke up with another headache this morning. I do not have a fever with the head chills. My shunt was last revised in 1999. I am going to my doctor tomorrow to pick up copies of my records so I can get a better understanding of my history and look up more info on some of the things I have experienced so I can get a better understanding of what it may be before I go back to the doctor.

Lisa14 04-17-2013 04:57 PM

Quote:

Originally Posted by kl2568 (Post 975825)
hey,
I woke up with another headache this morning. I do not have a fever with the head chills. My shunt was last revised in 1999. I am going to my doctor tomorrow to pick up copies of my records so I can get a better understanding of my history and look up more info on some of the things I have experienced so I can get a better understanding of what it may be before I go back to the doctor.

Hey kl
Sorry to hear you keep getting these headaches, I know from Dean they suck!! Good luck with getting your medical records and getting things figured out. I hope all goes well for you. keep me posted on whats going on.


All times are GMT -5. The time now is 03:48 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.