Hate This Disease, Whine and Cheese . . .
 

Most of the time I just go with the flow of having MS. I know that some days will be good and other days won't be as good and others are just awful. I have learned to pace myself, which is really hard to remember and do on my good days. I have learned different ways to deal with my symptoms and I know that eventually they will go away or at least lessen. But today, I hate this disease.

I hate that I can't just get up and go like I used to. I hate that I can't work a normal job with normal pay. I hate that due to having MS I struggle financially and that one "emergency" will blow my whole budget and it takes me a bit to get back on track because I can't get up and go like I used to and have a normal job. From day to day, I don't know if I'm going to be able to drive and/or be able to push the brake and gas pedal or have the cognitive functioning needed in order to drive. It's so frustrating to me as well as so stressful.

I know that I'm just whining here as many of you have symptoms that are far worse than mine. I know how all of you suffer in different ways and I can both empathize and sympathize with you. Like I said, I am just whining for a bit, something I don't do too often.

So, if you got this far....I'm passing some whine and cheese to you so you can take your turn. And, thanks for letting me vent.:hug::grouphug:

Thank you Tkrik? I feel like whining. The Refridgerator is dying. We need a new one. The ice cream is already melted and dead. Yuk. We are better off then many and with 2 kids away at college, well, this is really messing us up. If we had less, I can't imagine the balancing act it would take. We don't live close to the edge, but it doesn't take much to push you near. We won't go over but I know we are lucky compared to many.

Please pass some cheese.

Been waiting for a whine and cheese thread and now
that it's here, all I can do is echo Trish, as she said it
so well.:) Sorry Trish and thank you for your voice.

I've been feeling as you have, damn mad and put out
by this wretched disease.:mad: Although MS did not effect
me horribly until my 50s, I've had the signs of it for 50
years of my life and I'm only 73.:eek:

It has ruled most of my life. You've heard the saying,
"I have MS but, it doesn't have me"? Well that is BS,
because it has me, big time.:mad: And yet "It was the
worst of times, it was the best of times", Because it
has been all of my adult life and I am grateful to God
for it.

I just needed to Whine, please pass the cheese.:grouphug:

Oh yum you guys! Sally what kind of "whine" is that? It's good. And, Kicker, I love this cheese.:D

I feel the same way, Sally. MS does have me. It has me everyday. I am not sure who came up with this saying but I think they were in some sort of denial when they said it.:D I go through times when it completely rules my life. During those times, how could I possibly say "it doesn't have me." :confused:

Kicker - I hope you get the refrigerator situation taken care without too much "hurt" to your budget.

Another thing I hate about this crazy disease is that everything seems to trigger symptoms. Even the smallest thing can cause symptoms to act up, changes in weather, stress, illnesses, and even allergies. It's so annoying sometimes. I just finished up abx for a sinus infection and my allergies have been horrible and, as you can guess, I have more spasticity and nerve pain due to it. When I went to my PCP, we were talking about how sensitive the muscles are in diseases like MS. I can't remember exactly how she said it but it was something to the effect of when the muscles act up and get sore, inflammation starts, when inflammation starts fluid builds up causing swelling. I have total body swelling and, although she is not sure what is causing it, she said spasticity could be part of the problem. (BTW - All blood tests came back normal with the exception of vitamin D. So she thinks a lot of this swelling is from allergies as well as increased spasticity due to the MS reacting to the allergies.) UGH!

Passing that yummy whine and cheese that Kicker and Sally shared . . .

Frozen lunch entree is soggy, fridge is gone.

I hope this isn't the beginning of, "bad things happen
in groups of three", thingy.:eek:

:(

I hate it too.

Biiig hugs!!!:grouphug::hug::grouphug::hug:

Oh no, Kicker!!! A soggy frozen dinner does not sound appealing at all.

Anya - Hang in there. MS has a way of creating havoc for us and interrupting our lives. Hope you feel better soon.

I hate that I can't wear my pretty shoes anymore. I love shoes. I have not worn my heels in years and my wedges sit in my closet begging to be worn this spring/summer. Wedges are easier to wear but I haven't worn them in a couple of years. *sign*

Passing the whine and cheese . . .

[QUOTE=
I hate that I can't wear my pretty shoes anymore. I love shoes. I have not worn my heels in years and my wedges sit in my closet begging to be worn this spring/summer. Wedges are easier to wear but I haven't worn them in a couple of years. *sign*]

I agree! I hate that all I can look for now are some kind of athletic shoe that has good support and good tread. I don't even look at dresses anymore because I can't wear a cute shoe with it. MS is dictating my wardrobe and it is not always fashionable. I HATE that!:mad:

Just dropped in to catch up and landed here.
:cool:…a whine and cheese party; so here’s my little ditty to sum things up at my end :).

(Sung to the tune of Jimmy Cracked Corn)

My fridge is empty…and I don’t care
Everything is spastic…and I don’t care
MS makes a mess…and I don’t care…
My mind has gone away :D:(:confused::p:rolleyes::eek::D.

May we all feel better soon :hug:.

With love, Erika