Gastroparesis
 

Has anyone been diagnosed with gastroparesis, its where part of your stomach stops moving and digesting, or he nerves shut down which builds up food and causes severe pain and vomiting alot. My doctors are blaming it on the meds, which could be but its either using pain meds for the RSD or stopping and going backwards and being in pain from the RSD. I dont know what to do. I have been started on a new med to help with digestion but if it doesnt work then I might need a feeding tube straight to the small intestines which I hope not. Just was asking if anyone has any ideas. I as already diagnosed with RSD in the stomach a few years ago before the gastro started but could there be a chance its not the meds and is the RSD its self.

Samantha

Oh my word that sounds horrible, hope you're having an ok day with things generally and not feeling too bad.

I've heard of CRPS in the stomach, but know nothing about it I'm afraid. There should be some info about online - if you've got it in your stomach tho, I'd think it could cause those problems all by itself, however I know from my own problems with meds how badly they can affect your whole gastro system. I had to stop mine after bouts of gastro pain and sickness, liver and kidney function tests ok but pain doc said my meds were known for causing problems.

Also, I know there are some who believe its not a coincidence that so many with CRPS are either coeliac or have other auto-immune issues. I am a coeliac myself and I know how sick I get if I eat any gluten. Might be worth trying a gluten free diet for a while and see if it helps at all.

Sorry I can't help much, hopefully you will get some answers and a way forward soon though. Good luck with it :)

Bram.

Hi Samantha! Sorry to hear of these issues you are having. I was diagnosed as having gastroparesis several years ago. This was before my RSD began spreading so much. From what I have read, gastroparesis is not so unusual for those with RSD. The dr that diagnosed me really didn't tell me a lot about it, so I did my own research. He did try one medication, but I was allergic. I read that it is more difficult to digest raw fruits and veggies, high fat and high fiber foods. I ended up going gluten free a couple of years later when we realized that I also have a gluten intolerance. Avoiding gluten and cutting down on those others things really help my hurting gut!

Good luck to you!
Nanc
:hug:

Hi Samantha,

My daughter was diagnosed with Gastroparesis, she was diagnosed two years ago, went the route of the feeding tube, and TPN. We went to see a doctor at the Cleveland Clinic in Weston Florida, Raul Rosenthal. She was in the beginning stages. She now has a Gastric Pacemaker. She has gained over 35 lbs. She is doing well. I am not going to say that she doesn't struggle because she does. If you have any questions please feel free to pm me.

Sandy