Lyme Disease + PN
 

Hi everyone, I'm new here and wondering if anyone has PN as a result of Lyme Disease (like me). I'm taking B vitamins in high doses. But I had a really bad flare u;p last week, which was nasty.

Welcome to NeuroTalk:

If you use the search engine on page 1 here on PN forum, you'll find some posts like this:

http://neurotalk.psychcentral.com/thread93712.html
and
http://neurotalk.psychcentral.com/sh...877#post634877

Lyme gets mentioned here quite a bit.

Just use the keyword "lyme".
We also have a lyme forum:
http://neurotalk.psychcentral.com/forum91.html

lizajane in some of her posts a couple of years ago was posting about the antibiotic therapy she was doing for long term lyme.

Hi Milo, I am new here and usually on a lyme forum. I am also suffering from neuropathy either from lyme, a coinfection or lyme treatment. I am trying to figure out which. I have been in treatment (antibiotics, herbal and supplements) for about 4 years now. While I had many many horrible symptoms, I am feeling great now EXCEPT for this terrible neuropathy. Started about a year ago as a sensitivity on my upper arms and is now mostly burning pain on right forearm down into pinky finger, on inner thighs and now buttocks. I have had spinal tap to rule out MS, and puncture to confirm small fiber neuropathy. I am taking 2400 mg. neurontin daily and cymbalta and while they help, they are not getting rid of it and it seems to be getting worse. My lyme dr. feels that it is bartonella causing the burning skin and I am now treating for that to see if we can get it that way. Who knows? I am at wits end.

I asked my neurologist the same thing , was working all the time outside picking ticks off me for 15 years. Never tested me for Lyme either. I feel so doomed sometimes because of inept doctors and a short checkbook. I guess ObamaCare is going to save the world but us.

I know there are no easy answers to these complex problems we have, I have no answers and a lot of questions myself also. Check mrsD. B12 sticky at the top of the page here ,it really does work I am very slowly coming back to life after almost 2 months I can feel a major difference. Hey ,I can wiggle my toes now ! Do yourself a favor and read up on that B12 sticky great advice for free ! I am at my wits end too that's why I am here! Don't give up never give up live another day, God bless you my friend. Peace ! It will get better someday.

see my new post
 

I've posted on my lyme treatment, so I think you might find that helpful.

Is it necessary to have another testing after having been tested negative for Lyme Disease during the onset of the neuropathy? Does Lyme disease also have a false negative result? Thanks.