Question for MSers:
 

I suffer from progressive nerve damage, but as of now have yet to receive a dx. MS is one of the conditions that have been considered. My question is this:

Have any of you who have MS ever experience pain in the feet, hands, wrists and sometimes arms that feel like deep bone pain, or maybe a torn cartilage. It feels very much like when you get your hand crushed in an over-zealous handshake, but radiates from there and can last for several days. Thank you all very much in advance for any advice you can give! :)

I have that deep, throbbing type bone pain sometimes. Usually it's in my hands and/or elbows. I'm assuming it's arthritis? Maybe it's MS related. I told my neuro about it and he really didn't have much to say about it. I usually take Aleve and that takes care of it.....or makes it bearable. If you don't have a dx of MS yet it could be any number of things. Have you seen a neuro yet?

Idealist, I have many MS symptoms, but carry the diagnosis transverse myelitis. My neuro is the director of a local MS clinic, an expert in the field and on the board of the Transverse Myelitis Association. And I am an atypical TMer, with slow onset and progressive symptoms with no remissions, unless you count an hour here or there where I can walk ok, or my meds are working!

I sometimes describe my foot pain as if someone were trying to pull out my nails, or twist my toes in their sockets, or drive a spike through the arch of my foot, much like an old Roman crucifixion was carried out. It is accompanied by hyper-sensitivity and hyper-reflexes, and spasticity that causes my toes to curl or spread or make putting on and wearing shows painful or impossible. I also get the hug at about the level of the T-spine where he believes my inflammation is, although my MRI's have been clear so far. And I get the exhaustion, out of the blue sometimes.

Welcome to the club. Use your computer to do research. And remember, every case of MS, TM, or any autoimmune disorder is unique and different. And no question is silly or stupid. :Wave-Hello:

Thanks, Kitty. :) Yes, I have been to a total of 7 neuros and about 25 other docs so far. Last year I visited Johns-Hopkins. As of now, however, I am only seeing a pain-specialist and my PC, as well as any other docs he feels like sending me to. Thank you for taking the time to give me some input...

Thank you, LH. :) The pain I am feeling does seem similar to what you describe. I've never read much about TM before. I think I should give that a try. I also suffer from severe pain in all the muscles on the left side of my body, as well as having abdominal symptoms, along with exhaustion and a few other things. Maybe this will help lead me in the right direction. Thanks again!