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-   -   Possible Seizures?? Help need answers (https://www.neurotalk.org/epilepsy/187525-seizures-help-answers.html)

hissleepy 04-25-2013 01:28 PM

Possible Seizures?? Help need answers
 
Ok for the past 4 years I have these what I call "episodes" where I will randomly get a sense of deja vue that is accompanied by a "nervous" stomach, flushing and increased heart rate. They last maybe 15-20 seconds and if I did not tell you it was happening you would never know as I can function normally the entire time. It will happen several times a day for a period of about a week and then I can go for weeks with nothing. They are physically and emotionally draining and after it happens I am anxious because I fear anouther will happen. I am tired of having these. The research I have done seems to suggest temporal lobe seizures. Anyubody else have these or something similar?

Porkette 04-25-2013 03:44 PM

Hi hissleepy,

What you are describing sounds like a possible simple partial sz. also known as a aura sz. This happens to me often I will get a nervous feeling in my stomach and then a few seconds later I will start to blank out having an absence sz. or a complex partial sz. I've had sz. for 41 yrs. and the best thing for you to do is to see a neuro or Epileptologist and get some tests done like an e.e.g. or MRI to find out if anything else is going on. Start keeping track on a calendar and write down each time you may be possibly be having a sz. and write down the description of the sz. by doing this the neuro or Epileptologist you see may see a pattern in the possible sz. I found that lack of sleep and stress are the 2 main things that can trigger sz. for a person as well as hormones changing. Try taking vitamin B12 1000 mcg. once a day and see if that helps you. I know it helps me a lot because the vitamin B12 helps calm my nerves. I wish you the best of luck and May God Bless You!
Sue

hissleepy 04-25-2013 03:49 PM

Thank you for your response I am currently seeing a neuro doctor and had a EEG which of course I did not have an episode during, so it was normal. I have to have a sleep deprived EEG soon so hopefully it will give me some answers. I just wanted to know if anyone else experienced this as well. I do try to record them and how many I have a day etc. I am just so tired of it happening and being anxious waiting for it to happen. I am glad I found a place to share this with thanks again

Quote:

Originally Posted by Porkette (Post 978339)
Hi hissleepy,

What you are describing sounds like a possible simple partial sz. also known as a aura sz. This happens to me often I will get a nervous feeling in my stomach and then a few seconds later I will start to blank out having an absence sz. or a complex partial sz. I've had sz. for 41 yrs. and the best thing for you to do is to see a neuro or Epileptologist and get some tests done like an e.e.g. or MRI to find out if anything else is going on. Start keeping track on a calendar and write down each time you may be possibly be having a sz. and write down the description of the sz. by doing this the neuro or Epileptologist you see may see a pattern in the possible sz. I found that lack of sleep and stress are the 2 main things that can trigger sz. for a person as well as hormones changing. Try taking vitamin B12 1000 mcg. once a day and see if that helps you. I know it helps me a lot because the vitamin B12 helps calm my nerves. I wish you the best of luck and May God Bless You!
Sue


Darlene 04-26-2013 12:05 AM

Nice to meet you!!
 
hissleepy,

:Tip-Hat: It is great to have you come and be with us. You will fine a great number of dear friends to listen when you are in need of ears. Please, just let us know how we can help you out. You will find out we are supportive and relaxing place. Sad to hear what you are going through.

Please keep us up to date on your situation. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you. :smileypray:

Porkette 04-26-2013 06:10 PM

Hi hissleepy,

Over the yrs. I've had many e.e.g.'s done and it showed only activity on the right temporal lobe but when I had brain surgery done to help reduce my sz. my neurosurgeon also found damage on the left temporal lobe. Sometimes brain damage can be to deep in the brain for an e.e.g. or other tests to show anything.
I'm glad you are keeping track of your sz. One thing you might want to do is take note if you are on your computer, strobe lights or any type of bright lights when the sz. happens this means that you may be photosensitive meaning that certain colors or brightness of lights will trigger a sz. I found out awhile ago that cell phones trigger sz. for me if a lot of people are using the cell phone at the same time I often have a sz. Another thing to keep your eye on is to see if there is a low pressure in the weather when you have any sz. I have seen a pattern in my sz. and sometime one or two days before it rains or snows I will have a sz. and my Epileptologist told me that when a low pressure comes in it makes the air more heavy and humid which in turn can affect a persons hormones and trigger sz. for that person. I wish you only the best of luck and May God Bless You!
Sue

Jennybristol 05-03-2013 06:22 PM

Thank- you all
 
hello, I just stumbled on this site and found it extremely helpful! I had my first seizure about a year ago, And it left me in a dejavu, dreamy state for a week or so.. I suffered severe back and rib pain for almost three months. Then, just two weeks ago I had a second seizure. I don't remember anything during these episodes, I just find myself confused and sore. Both were in the middle of the night, while sleeping. Then, in the wee hours this morning, again during sleep, I has my third seizure. My husband
called 911 Andy I don't even remember them being here. When I came out of it I didn't even know my name for a few minutes. It took about ten or fifteen to figure out what day and time it was, and that I had to work. I feel better now, except back and rib pain, but I am thankful for all the helpful posts here. I just stopped menstruating in January, so I'm hoping these are due to menopause. I was beat up badly a few years ago and sure hope I didn't sustain serious head injuries. another cause I have been hearing is stopping drinking alcohol, which I recently did. Hmmm? Anymore good advice out there. I'm going to the doctor tomorrow.
Thanks everyone and have a nice day!

Darlene 05-04-2013 12:59 AM

Nice to meet you!!
 
Jenny,

:Wave-Hello: It is great to have you come and be with us. You will fine a great number of dear friends to listen when you are in need of ears. Please, just let us know how we can help you out. You will find out we are supportive and relaxing place.

Sorry to hear what you are going through at this time. Then you to go on with these signs check with an Epileptologist (Dr. specializing in epilepsy) at an Epilepsy Center which are usually at University or large hospitals. I was lucky to go to one, there it didn't cost as much, because of the credit of the medicine because it was a school of medicine.

Your need to cut out the carbs and starch foods because they will trigger seizures. Start keeping track of your seizures by writing them down on a calendar, by doing this the Dr., he may see a pattern in your seizures. Get yourself on vitamin B12 500 mcg. once a day. Also avoid very bright light, like at a theater, the flashing can bring on a seizure. Just close you eyes and turn your head at that time.

Please keep us up to date on your situation. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you. :smileypray:

Porkette 05-04-2013 05:52 AM

Quote:

Originally Posted by Jennybristol (Post 980487)
hello, I just stumbled on this site and found it extremely helpful! I had my first seizure about a year ago, And it left me in a dejavu, dreamy state for a week or so.. I suffered severe back and rib pain for almost three months. Then, just two weeks ago I had a second seizure. I don't remember anything during these episodes, I just find myself confused and sore. Both were in the middle of the night, while sleeping. Then, in the wee hours this morning, again during sleep, I has my third seizure. My husband
called 911 Andy I don't even remember them being here. When I came out of it I didn't even know my name for a few minutes. It took about ten or fifteen to figure out what day and time it was, and that I had to work. I feel better now, except back and rib pain, but I am thankful for all the helpful posts here. I just stopped menstruating in January, so I'm hoping these are due to menopause. I was beat up badly a few years ago and sure hope I didn't sustain serious head injuries. another cause I have been hearing is stopping drinking alcohol, which I recently did. Hmmm? Anymore good advice out there. I'm going to the doctor tomorrow.
Thanks everyone and have a nice day!

Hi Jenny,
Welcome to the forum! You might want to look into having a sleep study done. I had one done a couple of weeks ago and the Dr. found I was having sz. in my sleep but I never realized it.
When I woman goes through her change it can sometimes increase or decrease the sz. it all depends on the area of the brain that's triggering the sz. I know if it's in the temporal lobe than there's a possibility that the sz. can increase do to hormonal changes.
I don't mean to be rude but alcohol can also cause epilepsy if a person has drank for to many years because it will destroy the brain cells. Also when a person stops drinking they can go through an alcohol withdraw that will sometimes trigger sz. Of course any type of abuse physical or emotional can surely trigger sz.
My advice to you is to see a Epileptologist and have some tests done to find out what's causing your sz. The Epileptologist can also help you with your back. I have 2 herniated discs and I found walking one of the best things to help my back. I also take vitamin B12 which calms the nerves so it reduces my sz. and also helps my back pain. I wish you the best of luck and May God Bless You!

Sue

amycompton 05-14-2013 07:45 PM

Partial seizures
 
Quote:

Originally Posted by hissleepy (Post 978323)
Ok for the past 4 years I have these what I call "episodes" where I will randomly get a sense of deja vue that is accompanied by a "nervous" stomach, flushing and increased heart rate. They last maybe 15-20 seconds and if I did not tell you it was happening you would never know as I can function normally the entire time. It will happen several times a day for a period of about a week and then I can go for weeks with nothing. They are physically and emotionally draining and after it happens I am anxious because I fear anouther will happen. I am tired of having these. The research I have done seems to suggest temporal lobe seizures. Anyubody else have these or something similar?

I was diagnosed with what my Neuro called partial seizures and said they can happen hundreds of times a day. I had to wear a 24 EEG thing (halter monitor?) but they found nothing remarkable. It was beyond frustrating, but don't get discouraged by those because they have to catch those on your bad days when your having those episodes... That's what I was told at least

Wren 05-14-2013 09:36 PM

I had steady partial complex seizures for 15 years and every sort of EEG over and over. Not one ever showed any sort of seizure.
Then, an MRI showed a lesion in left temporal lobe so I went into hospital for VEEG....... finally it worked.


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