excausted and alone in this.
 

No more,no more I just can't do it anymore this illness has taken more from me than anything else,and nobody in my family seems to care or wanting to understand it,that is why I am so alone in this. Sometimes when I start talking about it and I get all emotional and start to cry I get told to stop it,I just want somebody to hold me and tell me that everything will be OK and that I am not alone in this and just let me cry. Both of my legs don't want to hold me anymore so I have a walker,but even with that it has recently become more and more difficult to walk,I have no Dr.at this time so I have no support even from this side.

Hello excausted
 

I want to first welcome you to Neuro Talk. On this site you will never be alone. Nobody should have to face PN alone. What is important is that you continue your search for help. It is out there, and sometimes it takes a great deal of effort to find the doctor willing to listen to you. If you have to get angry about it, use the anger for the good and start banging on some doors. I go to a physiatrist. This is a doctor who specializes in pain first, and then trys to help you on a cellular level. If you post where you are near, what town, maybe someone on this site, especially the PN forum, will tell you about a doctor near by. You need help to deal with this. It hurts. I have that, or RSD in my left foot and ankle. Not been DX'd as it is one or the other. It has not spread.
I will be here to talk to. Nobody can do it on their own with severe medical issues. Is your family not helpful at all? Compassion? I have just a few friends who understand my medical problems. That being said, I have lost friends too. It hurts.
Do you do anything to try and distract yourself? sometimes this works. I do have medicaiton, but I try very very hard not to take any.
Please keep trying to find help. Don't give up. There is more to life than just pain. I take many suppliments, and over the course of the last year, I have gotten better. I was in a wheelchair last year. I am walking now, but it does give me some trouble. Please keep in touch. I will keep you in my thoughts and prayers. ginnie:hug::grouphug:

Hi exhaused ---I just wanted to say how sorry I am reading your post . I have been thru some pretty dark times I had cancer,sfn,neck fusion. There were times I was pretty dark--- pain and suffering will do that to the best of us. Im glad you joined its hard to cope with stuff on your own. Allow yourself time and start to do your own research there is help!! I found by being my own advocate as far as my heath --shifted my focus and I started to become determined to find something to work. Today-- Im sending you a :hug:

Welcome to NeuroTalk:

We here have alot to read and learn. The reason for this is that doctors don't always know what to do with PNers. So we have searched the net, and provided the most recent medical information for readers here to try on their own (with some medical support and testing) to heal themselves. Sometimes you can do simple things, to allow yourself some relief. But you have to do that homework. Do a little bit each day... many of our members and readers do find some relief. And I do make sure most of it is affordable.

If you read along, you may find someone with something that strikes a familiar chord with you. Also our SubForum has information about toxins, drugs that may cause PN, and other ideas.
http://neurotalk.psychcentral.com/forum119.html

The very first thing since you are so tired, is to consider B12 supplements. If you can get tested first that would be ideal.
If not, you can do this yourself for very little money.

http://neurotalk.psychcentral.com/thread85103.html

I know what you mean exhausted
 

. Firstly I know what you are going through and the misery you are living everyday and I live it also. If you can by all means get to a neurologist as soon as possible, get your blood tested from A to Z and maybe you will get a clue what's wrong ,very important you do this. I understand how family members shut you down when you are in that stage of helplessness and leave you to your misery. The truth is nobody really understands unless they are in your shoes and most people here have been there or are still there like myself. I want you to understand you are NOT alone and take the time to read a lot about this neuropathy you have. There is a lot of information here that can save your life as it did me, and get your live back to normalcy. And most importantly pray and keep hanging in there it will get better soon, Peace !