![]() |
Abdominal weakness
I am currently getting IVIG (thank goodness!!!).. but have been having a problem the past few months when IVIG starts wearing off with worsened abdominal/trunk weakness.. Does anyone else get this?
Most of my weakness is proximal and face. I have a sleep study scheduled, but still have about a month to go before that happens.. It's just so anxiety provoking to be so weak in the trunk - when I got admitted initially my PFT's were low, trunk was so weak, and I coudlnt' breathe well at all.. last week at my neuro apt my PFT's were great, but as the IVIG wore off I felt worse.. I feel like if I press down using my ab's that I am going to rip my muscles off of my ribs? It kind of hurts in a strange way.. Anyone else have these symptoms? Even going to the bathroom can be hard at times, then about 4 days after IVIG things get easier for a week or so.. but never "normal" |
I get the abdominal weakness as well, including pelvic floor and sphincter muscles, especially when the MG gets really bad. I usually do not have the strength for a bowel movement until I have had my morning mestinon. After ending up in the ER with shortness of breath and released, I did not have much control of my bladder for 2 days. This has been better since I have been on pregnisone.
Sorry you are having the same trouble kathie |
BNY806 said, "...Even going to the bathroom can be hard at times..."
Kathie said, "... did not have much control of my bladder for 2 days..." As 'those guys..' say in eastern Canada, "Good on YA!!!" In the past, this topic was avoided like the plague! About 42 people nodded their head when they saw that.... :) |
So i'm not alone in that? I do feel like EVERY muscle is affected.. I guess I used to kind of hold in my stomach so it would be a little more flat after having a baby. ..but now I don't have the strength to do that.. I feel like a lump O jello sometimes!! I remember when I crashed I couldn't do a thing, including go to the bathroom, get up off the toilet etc.. it was so awful! I just don't want to reach that point again! The abdominal/respiratory weakness makes me so uneasy!
Thanks yall :) |
For me, no mestinon = no bladder control.
|
Well....something to look forward to....urg. :(:(:(
|
Maybe it won't do it to you. Everybody is different.
|
Do yall ever feel like your ab's are going to be torn away from your ribs when your torso is weak? I have hormones exacerbating things in addition to my IVIG starting to wear off - ugh.. I pressed down on something with my hands (which I never knew used your abs before).. but my abs were so weak it felt like they were going to rip apart from my ribs! then I was sore for a day - like a pulled a muscle from such a simple task.. laughing can even bring on this abdominal wall strain!
|
I think that may be the intercostal muscle pain that I occasional get. They are such small muscles but they hurt really bad. It kind of feels like the rib is pulling away. One time there were so painful, I could not hook my bra for 2 weeks. I had to ask my teenage daughter! How embarassing!
Kathie |
When I was recovering from my hysterectomy, I wore a surgical binder around my abdomen that was adjustable by velcro. Do you think something like this would give you additional abdominal support and relieve the abdominal wall pain? I think I got mine at Walmart, it was not very expensive.
kathie |
All times are GMT -5. The time now is 01:25 PM. |
Powered by vBulletin Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.
vBulletin Optimisation provided by
vB Optimise (Lite) -
vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.