thymectomy survery
 

1. Who has had one?
2. Was your thymus enlarged or have a tumor?
3. did you have DaVinci
4. did it help?

Just met with surgeon... CT scan shows normal, although he says that it may not be. Just trying to decide if I should have it removed or not....it would be daVinci. No huge rush unless my symptoms take a rapid turn for the worse.

Thank you all!!!
:):):)

What is DaVinci?

thymectomy survey
 

i have not had surgery, ct showed no problems, however, im 75 yrs old and i don't think it is highly recommended, for my age.
once neuro say no problems, it was not mentioned again.

FREDH

Only saw the neuromuscular specialist 1 month ago. Ct scan was normal of thymus. I want thymectomy anyway- best chance of a remission. I will discus it at the next visit in July. They would go in through the ribs. I will let you know how it goes. I am not comfortable staying in my limited capacity for the rest of my life.

kathie

thmectomy
 

I had the robotic thymectomy done in December 2011 in Chicago. I had an enlarged thymus, no tumor. I am seronegative, so the docs honestly left it up to me to decide, as they didn't really have the research to back up that it would work for me. To my understanding the statistics on success are generally from those who test positive for the antibodies.

Anyway, the surgery went fine, I was in 4 days instead of 1-2 due to breathing tube stuff, and back at work in 2 weeks.

18 months later, I am a bit better with my MG, but I tend to give credit to my meds rather than the thymectomy. I'm on prednisone, mestinon, and imuran. I have mild-moderate generalized MG which began in 2009, diagnosed in 2011, with ocular symptoms starting about a year ago.

1) ...raising my hand
2)....thymus appeared normal
3)....I had a sternotomy (there are other names for this method)
4)....I "believe" it did :)

Hello Celeste, "DaVinci" is a robot...:eek: :D

thanks...I am 48, but I have children that are three and six years old..I need strength!!!

Dr. is leaving it up to me. I tested positive for MG...started as occular and we were on old ....6 months after occular started...generalized appeared. I want to nip this as soon as possible, but don't want to have surgery that won't help. Dr. "SAID" ....2/3s of MG patients in my stage get better. But, I also wonder where in the world he got this number/stastic?????? The DaVinci seems pretty "easy"...but, as I said....I have two little kids and don't want to have a surgery that will disable me for awhile and in the end...do not good....

Just a tough decision.....:(

I so appreciate any and all advice I can get from all of you!!! THX:)

what is sternotomy....how does that work??? DaVinci is a robot that goes in with dr. assistance to remove thymus. thanks!!!

a dr. with a robot does the removal of the thymus...less invasive.... less healing.