mjp67
 

I am new to this forum. I was diagnosed last year with mg. Could not take prednisone. Now taking mestinon and immuran. Still having multiple symptoms daily. Struggling to stay positive.

welcome
 

I am new to this forum too, I was diagnosed in early May. I have gotten lots of good information and support here. Sorry about your diagnosis, glad you found us here.
Sandy:circlelove:

Hi, and welcome. How long have you been taking Imuran? What dose are you taking? I started with two pills a day (100mg), but I'm now taking five (250mg). I wish my doctor had started me on a higher dose. They say Imuran takes a long time to kick in--six months to a year. I'm doing really well now, but it's hard to know whether this is just a good spell--I get those--or the beginning of something more lasting.

Abby

Sorry you are experiencing symptoms. What type of symptoms do you have and how severe are they? What is your dosing schedule for Mestinon?

It takes a long time to find the combination of treatment that works for each person. I have had symptoms for over 2 years, but just got the official diagnosis 6 months ago. My MG is still not stable yet. I take 60 mg of Mestinon 4 times a day and 180 mg at night. I am currently weaning off pregnisone - down to 30mg a day. I trying to get IVIG treatments approved by insurance.

Did they scan your Thymus? I am still hoping for a thymectomy.
kathie