NeuroTalk Support Groups - New with Complex Partial Seizures

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New with Complex Partial Seizures

I am 63 years old and have been diagnosed with CPS over four years ago. Only this year have I agreed to go on medication ( Topamax) my neurologist told me he would be taking my drivers license away if I did not go on it. The issue is that I only experience episodes of seizures in April and May. This is the same time as all my allergies act up. Has anyone ever experienced seasonal seizures like me?

Welcome to the gain!!

Dean,

Great to see you have come to be with us. Since I was able to go through with surgery in 2009, I have not had any other sz.

The best thing for you to do is to see a Epileptologist, who is a neuro who specialists in epilepsy. I was very lucky that my neuro sent me to a great one.
You will find them at a medical school. And the cost is less, they will work with you. Start keeping track on a calendar and write down each time you may be possibly be having a sz. and write down the description of the sz. by doing this the neuro or Epileptologist you see may see a pattern in the possible sz. Try taking vitamin B12 1000 mcg. once a day and see if that helps you. I know it helps me a lot because the vitamin B12 helps calm my nerves. One other thing to do is watch out for bright flashing lights, like in a theater. just close your eyes and turn your head. This could cause a sz. My thoughts and prayers are with you.:hug:

Hi Dean -- I was 46 when I had that first seizure. (68 now) and I had all the usual tests - including an MRI that was misread so I did not learn that I had a tumor until 2005.
Have you had an MRI? That's very, very important.

Hi Dean,

I've had absence and complex partial sz. for 41 yrs. and just like you I also have seasonal seizures. I always have more sz. in the fall and winter compared to the spring and summer and my Epileptologist told me this happens to some people do to the increase or decrease or serotonin. When there's more serontonin in the spring and summer I have fewer sz. but in the fall and summer the serontonin level goes down and that's when I have more sz.
I tried taking tompax a few yrs. ago but it wasn't strong enough for me and my sz. increased, on top of that I didn't want to eat at all. I have found that the drug vimpat has done wonders controlling my complex partial sz. I only had 7 of them last yr. and that's very low for me. One thing you can try is taking vitamin B12 1000 mcg. once a day. Vitamin B12 calms the nerves down and it has greatly reduced my sz. plus you don't need a prescription for the vitamin.
I've gotten the best help from seeing an Epileptologist these Drs. specialize in epilepsy and I've found they know how to treat the epilepsy much better than many of the neuros. I've seen over the yrs. As Darlene mention keep track of your sz. and take note if they happen when a low pressure is headed your way and also take note if you happen to have any cp sz. when you or others around you are using a cell phone. If this happens you may be "cell phone sensitive" which means the frequency of the cell phone is causing sz. I found out I have this problem and it's not easy when I have to go to the stores. Here's wishing you well and May God Bless You!

Sue