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-   -   Frustrated.. (https://www.neurotalk.org/multiple-sclerosis/189673-frustrated.html)

used2party 06-07-2013 03:59 PM

Frustrated..
 
Finally had my appointment with an ophthalmologist regarding my vision. Have had problems due to the optic neuritis in both eyes on different occasions that haven't really subsided 100% since the attacks. The answer I got was my vision was fine... Quite frustrated with this because I know first hand it is not. I asked if it can be permanent damage to the nerve they can't see. They said it was possible, but can't know for sure because it was my first time seeing them. Told me to contact them if I have another attack.

Anyone ever run into this problem? I'm thinking of asking for a referral to an neuro-ophthalmologist to further investigate.

Thanks for reading, have a good weekend!

ANNagain 06-07-2013 04:12 PM

used2party,

Yes, I would see a neuro-opthalmologist -certainly if it happens again and soon to get baseline before another problem.

Best to you,
ANN

KittyLady 06-07-2013 07:14 PM

My eyesight has been going south for years but the eye docs have been telling me my eyes haven't changed at all. Well, my eyes tell ME different. Just because they cant see it, doesnt make it not real.

jprinz99 06-08-2013 10:28 AM

ditto here

At least I finallly got decent answer. My neuro laughed and said "Not surprising as they can only see the first part of the optic nerve by looking into your eyes. There coud be a lesion or an area of inflammation further along the optic nerve. It doesn't really matter what they say, as you are the one who 'sees' - not the optician/opthamologist"

While it didn't "fix" my vision, at least I felt recognized/validated.

used2party 06-08-2013 05:21 PM

Thanks for all the replies everyone. Jane & Kitty you have described exactly how I feel. I kinda figured they could only see the front part of the optic nerve. When i tried explaining to the eye doc that my eyes are "out of sync" if that makes any sense, they kinda just looked at me like, "Oh"... Tried telling them that I've had optic neuritis at different times in both eyes with different amounts of visual loss each time. All they said was if another attack occurs come back in. Rather frustrating!

SallyC 06-08-2013 06:46 PM

An ophthalmologist should have done a more thorough test.:rolleyes:
Find a new one and feel better soon.:)

Natalie8 06-09-2013 12:44 AM

Find a neuro-opthamologist. Even if he/she can't fix anything they can at least validate you. My first symptom of MS was optic neuritis. I saw 3 opthamologists within 2 weeks who said everything was fine -- I was persistent because I only had a mild case but everything felt off. I still had 20/20 vision but it was like someone had smeared Vaseline over my cornea (mildly blurry). In conjunction with the GP, the 4th opthamologist figured it out. Keep looking for the best doctor until you get what you need.

jprinz99 06-09-2013 06:23 AM

ditto- you need a neuro-opthamologist or a really good neuro who specializes in MS (like at a MS clinic or MS only neurology practice)


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