Lambert Eaton
 

I am a 33yr old female & I am fighting this battle of Lambert Eaton. The treatment I have had in the past, hasn't worked, so I need more test done to help with this disorder. The pain is out of control & it has be down in tears. I am trying my best to do what is needed to do, & take this pain away. I am ready to give up, but I can't just do that. What can I do or who can I see to get help with this painful disorder?:confused::(

Welcome to NeuroTalk:

We have another forum with some discussion about this also:

Try here:
http://neurotalk.psychcentral.com/forum77.html

edit to say.... I see you found this by yourself... so that is great!

Hi there! I am usually over on the myasthenia forum, but saw your post - I also have symptoms very similar to LEMS, I get IVIG>. but they can't pinpoint exactly what the cause is.. where is your pain? My muscles hurt to be touched - to sit and my joints, even my sternum hurts.. Anyhow the MG forum is great and has several others who have been diagnosed with LEMS