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-   -   New member -Pseudotumor Cerebri (https://www.neurotalk.org/new-member-introductions/190166-pseudotumor-cerebri.html)

tonyawatwood 06-17-2013 04:45 PM

New member -Pseudotumor Cerebri
 
I have recently been diagnosed with pseudotumor cerebri. I was shocked to find that so many others have this diagnosis. Mine started when I went to my family doctor because I could hear my heartbeat in my ear. He gave me some steroids and said he thought I had Eustachian tube dysfunction. A month went by and it was still there. I also had recurring headaches. My doctor immediately made me an appointment with an ENT and told me that he thought that I had a tumor.
My ENT was fantastic and things moved very quickly for me. I saw him on Thursday and on Saturday, I was having MRI/MRA/MRV done. I saw the neurologist the very next week who diagnosed pseudotumor. Thank goodness there was no actual tumor. And I am trying not to let this control my life. I have seen my ophthalmologist & everything looks good. My main thing is watching what meds I take with my Diamox and also beginning a journey to lose some weight. My eating habits are better and I work out until the pounding and pressure in my ear and head get to be too much. I was fortunate to have doctors who rushed me through everything just in case it was an actual tumor. I am blessed to find others that I can relate to and are going through this same thing.

Darlene 06-18-2013 01:12 AM

Great to meet you!!
 
tonyawatwood,

:Wave-Hello: It is great to have you come and be with us. You will fine a great number of dear friends to listen when you are in need of ears. Please, just let us know how we can help you out. You will find out we are supportive and relaxing place.

Please keep us up to date on your situation. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you. :smileypray:


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