Live Wire
 

I have something that happens in my foot, that in my mind’s eye would be like an electrical wire that I have seen in movies, on the ground jumping around wildly. When this happens I begin to freak out, asking myself, oh crap, when will it stop? Please make it stop! Thankfully it doesn’t last but perhaps a few minutes and then subsides if I change positions and move around, which is not hard because I start moving like I have ants in my pant. If I had this type of pain ALL the time, I KNOW I would NEVER make it a full day. Of course I have lots of other pains that sometimes make me think I won’t make it, but this FAR exceeds them.

What is up with this? Does anyone know?

I have also had more than usual spasms. And these usually happen in my legs, and have been, but I am also now getting it in my biceps, and twitches in my hands too. Is this all a spasticity issue? I know the spasms are, but is it that the nerve endings in my foot are also spasming like a live wire??

Ps. my symptoms are full body and have been for a while. I have also had this live wire sensation for many years at random times. It happened today and I just thought I would reach out and ask my fellow CRPS II’ers & RSD’ers.

Hi Vrae,

I too have that "live wire" pain as you describe. The first time I felt it was when I was lying in the recovery room following a complicated hip surgery and what I now know was a nerve injury that triggered the CRPS II in my right hip/thigh. For me the pains happen randomly througout the day and often bring tears to my eyes. I am sorry that you are having this pain.. it is awful. I have noticed that if I use my stationary bike more often that it seems to make these occur less frequently and reduce the intensity. I'm sure any type of therapy/movement would work if you are able.

I'm so sorry to learn you are full body.. do you mind sharing how long from diagnosis before it was full body? Was your nerve injury a complication of surgery or something else?

Kindly,
Tessa

Hi Tess,
Thanks for your response!

Yes, I woke from an L5 S1 discectomy surgery with CRPSII in 2004. The disc had ruptured.

I guess it took about four years to start moving/ mirroring in my left limb, and it has been a slow progression elsewhere ever since. I have had it in other places like my arms, hands, face, back and torso in the last few years. The upper body becoming more and more effected all the time now.

My surgery: I was supposed to be in and out in three days. It seemed like nothing went according to plan. They nicked my dura during surgery. I was to lay flat for seven days in the hospital as to avoid a headache they would not be able to control. I was also paralyzed from the waist down during that week. I had to learn to walk again when I was finally allowed to get up, which was done over the course of a day by raising the bed upright in small percentages. The doc also over stretched my nerve root.