NeuroTalk Support Groups - Superior Canal Dehiscence Syndrome SCDS

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Occipital Neuralgia and other Cranial Neuralgias (https://www.neurotalk.org/occipital-neuralgia-and-other-cranial-neuralgias/)

- - Superior Canal Dehiscence Syndrome SCDS (https://www.neurotalk.org/occipital-neuralgia-and-other-cranial-neuralgias/190419-superior-canal-dehiscence-syndrome-scds.html)

Superior Canal Dehiscence Syndrome SCDS

I just ran across this board on Neuro when I googled hearing eye movement, heart beat and more in my head.

I have been dealing with so many symptoms for the last 13 years.

I was diagnosed with Superior Canal Dehiscence Syndrome and had Middle Fossa Craniology at Johns Hopkins in Baltimore by Dr John Carey last Friday!!

My head is silent!!! I woke up from surgery with silence!!!

This horrid dibilitating syndrome leaves us existing and primary doctors are just giving us anniotics and the crazy treatment!

No more it's real!