My update
 

I had surgery 6/12 on my left battery site. He drained fluid, tacked battery down, and all was well. Well, the battery is still moving. I've tried compression shorts, ace bandages, corsets, and everything I can think of to keep it tacked down. It just won't stop flipping. I am pretty thin, so I don't know if that's something thin people deal with (I was larger when I had the other surgery) or what. Anyway, I do NOT want another surgery as each one is like a dice roll to rsd spread. Luckily, the stim works fine, so I can deal with the bother of the flip I suppose. I have been having weakness/tremors in my legs, bladder issues, and some other non scs related issues. My neuro surgeon has ordered a myelogram. I'm worried about that. I've never had one. Anyway, I try to keep weight off the left side, and hope for the best! Hope all of you are well. :)

good to hear from you
 

Hi TK,
I am so sorry you are having this "flippin" problem...grateful the stim is working and so far no rsd. What does the doc say...he did the tacking down...I have no advice for you other than one thing I forget alot...nutrition and hydration..i know...simple enough tho in the whole quagmire of life I forget to eat properly.
I have read about thinner buttocks vs fuller ones. Like you I have lost some weight in that area...my battery is now sideways and has settled in there for now.
more advice on the way I am sure....so good to hear from you ...such hi hopes going into this fight...hang in there...there is a sweet side to this...I so appreciate simple things.
Highest hopes...keep us updated...I follow your story.
Johanna*

dear TK,

i did have that test
you speak of
i have written about
it
i am honest and to
tell you only my experience
if you would like
i will tell my story
gladly
my test was done
a year ago this JUNE

someone who cares

I would appreciate it. I'm a little worried. I know I need it, though.

i will tell you
 

dear TK

remember this is my experience
and it was necessary
as it gives definitive
answers
put a needle as an
epidural in my back
the table i was laying on
tilts
i was almost in standing
position at that point i am secured
by straps
dye is introduced radioactive
you are talked through it the
whole time
the table begins to tilt backward
you feel the dye go through your
body
as it began to reach the center of my chest
and the toward my throat is when i experienced
the pain something i never want to ever go
through again

in the end
not only my conditions confirmed
it picked up things i'd rather have not known
but gave the doctors
what they needed
after the procedure
a male doctor came into my room
and said
"Eva, i want you to know
there have been big burly men
who could not finish the test
anyhow
i don't want you to endure pain
who knows
maybe things are different
for you
source it on the internet
being on a site
that has been my life saving
a better understanding is always better
i am sorry
it is my story

praying yours is a breeze
and not anything like mine
you are to be in bed rest for 24 hours
and ice the back

i shall be thinking of you my dear

someone who cares

The CT myelogram
 

OH TK, sorry this is in your future. It is uncomfortable, no doubt about it. Been there, done that. By way of comparison, it was FAR more tolerable than the HeQQ of the Discogram. You can do this. Its discomfort was not for me a long lived phenomenon. It will pass........and for me, it passed far more quickly than the pain, the wicked excruciating pain of the Discogram.

Answers will be provided, and I pray your needs will thus be assessed so the required treatment is in sight.

Prayin,
Yup, :hug:

this TK is also true
thanks for adding
YOU ARE RELIEVED
OF THAT PAIN QUICKLY
and i to am another
who had the DISCOGRAM
NOT AN EASY PROCEDURE
UNABLE TO GET THE NEEDLE
IN 4 TIMES
NO PROBLEM WITH THE THREE
OTHER ENTRIES MADE
thank you for adding
some more information

someone who cares