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Kailei 07-05-2013 04:32 PM

New Here
 
My name is Kailei and I found this site through a google search for chronic pain syndromes. I was recently diagnosed with CRPS/RSD after an injury to my wrist. I have been through multiple procedures inclusive of surgery, at least 13 ganglionic block injections and a rhizotomy. Trying to get a handle on the pain and learning how others with the same illness cope.

I look forward to chatting with everyone on the boards.

ginnie 07-05-2013 06:28 PM

Hi Kailei
 
Welcome to Neuro Talk. You did find a great site with some of the most compassionte people I have ever met. I am so sorry you have RSD. Visit the forum on that. I sure do know what it is. I have PN, not as severe as RSD.
I know one treatment that has been used successfully on our service members, and for CPRS. You have to find out who in your area may do this. It is called Ketamine infusions. Some folks have gotten a remission from RSD. The JAMA medical journal has quite a few articles about it. Tampa Bay Hospital in my home state, does do this kind of proceedure. It may be worth it just to investigate a bit. I hope your pain level goes down, and that you have good doctors that help you to control the pain. ginnie:grouphug:

MelodyL 07-05-2013 11:00 PM

Quote:

Originally Posted by Kailei (Post 997694)
My name is Kailei and I found this site through a google search for chronic pain syndromes. I was recently diagnosed with CRPS/RSD after an injury to my wrist. I have been through multiple procedures inclusive of surgery, at least 13 ganglionic block injections and a rhizotomy. Trying to get a handle on the pain and learning how others with the same illness cope.

I look forward to chatting with everyone on the boards.

Hi there. Just wanted to say hi and Welcome.

You have a beautiful name. I'm trying to figure out how to pronounce it. lol

All the best. Keep posting.

Melody

Darlene 07-06-2013 12:52 AM

Greetings!!
 
Kailei,

:Wave-Hello: It is great to have you come and be with us. You will fine a great number of dear friends to listen when you are in need of ears. Please, just let us know how we can help you out. You will find out we are supportive and relaxing place.

Click on the following forum, there are some wonderful friends there to help you out.

Reflex Sympathetic Dystrophy (RSD and CRPS):
http://neurotalk.psychcentral.com/forum21.html

Please keep us up to date on your situation. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you. :smileypray:


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