Restless Legs
 

Please tell me how to stop restless legs!! I use to have them bad a long time ago, like 10 years ago, now its like the past week it has just been awful! I try to sleep, they want to play lol - when I'm sitting down they are fine. Any cures to this?!

In my mind RLS is one of the most frustrating and maddening symptom of MS. The only thing I have found to help is Pramipexole.

I take Baclofen every night before bed. My legs don't really give me much of a problem until around 6 PM. And they get increasingly restless until I go to bed. I have to take my first Baclofen around 6 PM and then every 4 hours or so afterwards.....if I want to get any sleep at all. :rolleyes:

I take Requip and it works well for me. There is no way I could ever sleep without it!

I took requip for years but am now on a new patch I replace every 24 hrs and no RLS symptoms since...one of the worst sxs I deal with...

I've taken Balcofen at 10mg per pill - says to take 1 every 3-4 hrs. I've taken even 20-30mg at a time and it doesn't help.

I was taking Pramipexole for period limb movement disorder (different than RLS, but same meds used, I think). It totally helped, but then I got edema and hives, the doc thought it was from than so I'm back to nothing. DH has a hard time sleeping next to me. I want to retry it to see if it's infact what caused the edema and hives, but I haven't gotten there yet.

I have a cure for some of you. Yes, I can say this with confidence because it worked for me for a quarter century or more, after a neuro suggested it.
I could not tolerate Baclofen or Zanaflex at all, so he suggested I get magnesium from the health store, any kind which gave the least diarrhea. 800 mg. at first. (Calcium is also needed but I was already taking it). Now it's 1000 mg a day in divided doses. As I have "progressed", I have needed more help, and E Complex and B1 have been added. Occasionally now I have breakthrough neuro symptoms in back and legs.

I too am not calling my problem Restless Legs. I think it should be called Myoclonus. It affects not only the legs but even more prominently the low back, which will jerk spasmodically if I don't take the magnesium. This is mostly at night. It only on very rare occasions occurs when I am awake and sitting up. It seems to get going when one relaxes. The whole leg up through the buttock will jerk. Also, if I didn't take the supplement, the feet would contort into very painful spasm, so it helps both of those.

It didn't cure me, I lied. But it stopped most of this for over 25 years. Whether that will continue I cannot say. Thanks to the neuro who knew about it. I forget his last name, his first name was James, at Scripps hospital years ago.

Oh, and then there is that bar of soap theory:
http://www.peoplespharmacy.com/2005/...oap-under-the/

I tried bar of soap but it did not work for me. Perhaps that is because I have Myoclonus rather than Restless Leg.