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-   -   Hello and any help or guidance appreciated (https://www.neurotalk.org/new-member-introductions/191698-hello-help-guidance-appreciated.html)

Wheeler 07-20-2013 10:45 PM

Hello and any help or guidance appreciated
 
I found this group by accident trying to find information for my better half who recently had an hypoxic anoxic brain injury that took all their short term memory :( It has been 4 months since the injury and even though they know who I am they can not remember previous days events or things that have happened in the past which includes that last 10+ years depending on events.

During all the testing and dr's visit it was determined my better half has sleep apnea...I had no clue previous to this event. My better half is now using a CPAP machine nightly.

We have been to different neurologists trying to figure out what happened and when or if they would get their short term memory back. Sadly after some neuropsych testing it was determined my better half has dementia at the young age of 59 :eek:

My better half will never go back to work since they can not recall previous days events or conversations. Luckily there is STD & LTD in place and currently State Disability Insurance is being paid bi weekly.

I am very worried trying to do all the dr's appts, paperwork, daily living/household issues and just trying to keep this boat afloat. I know at some point I will have to help them apply for SSDI and worry if Dementia is an automatic acceptance to SSDI or will there be a long drawn out ordeal? I have been reading the Social Security thread but I know each case is very different. I am so scared and do not know why our future holds....

Thank you all for taking the time to read my concerns and give me any help that might ease my mind. I am sure I did not give enough or all the right information but I will learn as I go forward at this site.

Darlene 07-22-2013 02:27 AM

Great to meet you!!
 
Wheeler,

:Wave-Hello: It is great to have you come and be with us. You will fine a great number of dear friends to listen when you are in need of ears. Please, just let us know how we can help you out. You will find out we are supportive and relaxing place.

Here you will find some great friends in the following forums to assist you.

Traumatic Brain Injury and Post Concussion Syndrome:
http://neurotalk.psychcentral.com/forum92.html
sleep apnea:
http://neurotalk.psychcentral.com/forum45.html
dementia:
http://neurotalk.psychcentral.com/forum59.html

Please keep us up to date on your condition. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you. :smileypray:

Wheeler 07-23-2013 01:03 AM

Hello Darlene,

Thank you for warm welcome and links to other information in this forum. I am hoping to get more information on the Social Security application process on that thread. That is my next concern and I am hoping there is the help I need over on that board.


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