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-   -   TBI Recovery Information Needed - Newbie (https://www.neurotalk.org/new-member-introductions/191759-tbi-recovery-information-newbie.html)

DanielsGirl 07-22-2013 04:38 PM

TBI Recovery Information Needed - Newbie
 
Hello New Friends,

On June 7th, my boyfriend Daniel was assaulted and sustained a severe TBI (was a 6 on the GCS 24 hours after injury with a 7 mm midline shift).
Obviously, for those of you who have been through this, finding good information is hard.
Daniel is in a rehab facility now, but is struggling with staying awake for therapy and isn't making any gains. He has regular sleep/wake cycles, cannot speak, move, etc. He's still got a PEG tube, and continues to fight infection constantly (UTI, Pneumonia, Thrush, you name it, he's had it.)
My question for you all is... how can I help him best? I'm constantly talking to him (when he's not sleeping), helping with this therapy, etc. He just isn't progressing past the three on the Rancho Scale and can't participate in therapy much. Some days it is so disheartening.
Any advice or great stories of recovery that you can share would be super helpful.
Thank you!

Em

anon1028 07-22-2013 04:49 PM

hi welcome to the board. I know firsthand about mild injury symptoms but not too much abuot your boyfriend's condition. a guy who might know a bunch is mark_from_idaho you might want to try to email him directly or send a message directly to him I do know that it is way early in your boyfriend's recover and that it sounds like he is getting the appropriate care. I really hope he gets better and if you need o just vent here is the place to do it, as there are many understanding people here.

Darlene 07-23-2013 01:51 AM

Nice to meet you!!
 
Em,

:Wave-Hello: It is great to have you come and be with us. You will fine a great number of dear friends to listen when you are in need of ears. Please, just let us know how we can help you out. You will find out we are supportive and relaxing place.

Sorry to ear what Daniel has been going though, and as well as you too. Click on the following forum there you will find a group of dear friend to help you out.

Traumatic Brain Injury and Post Concussion Syndrome:
http://neurotalk.psychcentral.com/forum92.html

Please keep us up to date on your condition. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you. :smileypray:


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