Update on MRI etc
 

Hi guys


First I just wanted to thank you guys for all of your help! How wonderful that people with like symptoms can connect together all in one place.


Well, according to my radiologist, my MRI was normal. Which is confusing but also good news at the as same time.


The altered sensation in my legs though is back again after a brief one week hiatus.


The only two tests that were odd out of all of my labs: Vit D (critical) and Lyme Disease.


So my journey for maybe MS ends here, but I think my journey for lyme starts. I have one of the more odd/mild presentations of Lyme they've ever seen although I'm so latent. I've put off treatment for years, mainly because once one is latent its years of antibiotics. so I ignored treatment until the legs started. But we will see now. I also have to rule out that its not some kind of localized pinched nerve first.

At any rate I made an appointment with a wonderful neuro who specializes in infectious diseases, I.e Lyme. But my appointment isn't unit jan as he's very high demand. These wait times are a killer.

Do not accept the Vit D treatment from your doctor if it is the RX D2...as that won't work.

You'll need D3 OTC.... 1000 IU D3 for every 10 points to raise.
Use 50 as your goal.

We have a poster on PN who had pain in her calf, significantly for a long time which stopped, when she started 5,000IU D3 daily.
She tried to reduce that dose, but the pain came back.

Vit D improves the immune system too, and if you suspect Lyme, you need that effect as well.

Congrats on the clear of MS problem for now. D3 is really inexpensive so start on that ASAP.

I'm glad that MS was ruled out for now. Lyme isn't anything to play around with so I hope your doctor can help you.

Even though you're not suspecting MS it would be a good idea to keep a journal or log of your daily symptoms and the medications you take. That will prove to be invaluable to your doctor when trying to make sense of your symptoms.

I hope you'll still continue to visit this forum. Lots of our members don't have an MS diagnosis yet but continue to have symptoms. You're welcome here anytime. :)

Good luck to you, Midori! There is a forum here you might check out: Lyme Disease, Shingles and Other Microbial Conditions .

As an aside to lighten the moment...I love a good coincidence. Your name, Midori, is a bright green, LIME colored alcohol. Did you know that? Anyway...Lyme disease...lime colored name...:icon_lol:

Come back any time! Let us know how things are going, and if you learn what it is that's affecting you. :)

ETA: Oh yes, and mrsD's info is good, but please also listen to what your Dr says. And keep bugging the Dr's office to get in earlier! I mean, really bug them. Five months is way too long to wait.

Good wishes Midori.:)

Please do come back and tell us how you're doing. I'll be
praying for you.

Aw. Thanks guys! :hug:


I will definitely keep a symptom journal. It's a great idea.

Sparky, I know that is an odd coincidence! And MrsD on this post was giving advice on Vitamin " D". :D the coincidences keep on rolling in lol


Mrs D. Yes vitamin D actually helped me so much so far as well. Strange adrenaline rushes and anxiety that came out of no where have gone away. So, a few symptoms down, now a few more to go! :wink:

Thanks guys for all of your help!! You guys are awesome!


I have my follow up Monday. I'll keep you posted! And hopefully her help will go beyond its all in my head :wink:

AWESOME! I'm so glad you are able to knock MS off your list. :hug:

My vitamin D was very low as well. Once I started taking it my muscle spasms lessened and I had more energy. It's a great feeling. I actually responded well to the prescription vitamin D and was able to raise my levels within 12 weeks. I did 2 courses. My first one I went from a level of 10 to 21 and the second round I went from 21 to 40 (within normal range). I now do a daily dose of D3 to maintain a good level. I just had a vitamin D test done and am awaiting the results. I'm hoping I went a little higher.

I hope they are able to get your Lyme's under control and treated. I'm glad you are going to a neuroimmunologist. They're awesome. I saw one when I was in a clinical trial. I honestly think that all MS patients should see one and have one as part of their team. He was really helpful to me and had lots of information to share.

Check in with us when you can and let us know how you are doing.:hug:

That's really good to know! Thanks! :-D

At my next checkup this summer I get to see how much my levels went up :)