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alove4mersey 07-27-2013 03:13 PM

Fiance's (possible) Chiari MRI's - anyone familiar with reading results?
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Hello, everybody! I am new to all of this so please bare with me! :)

My fiance is 35 years old with no history of health issues until March 2012 when he woke up with double vision, that is when all of this confusion started. We are at a loss right now so any help will be greatly appreciated.

Here's a little timeline (note no diabetes, no HBP, 20/20 vision, no health issues at all until now)

March 2012:
Woke up one morning with double vision
Mild loss of balance
Severe earache
Mild rash on scalp
Numbness in one arm/hand

April 2012:
Brain MRI with contrast (clear)
Visit to eye specialist (diagnosed with right 6th nerve palsy)
^scheduled a visit with a neurologist
Numbness increases in arm and hand
Ear pain continues even with medication (Amox.)

July 2012:
Loss of balance starts
Double vision continues
Hard to focus and concentrate
Starts complaining of back and neck pain/pressure
Ear pain continues (inner and back of ear/right ear only)

**** Winter 2012:
Double vision goes away overnight
Regains balance completely
Numbness continues
Made the mistake of cancelling our appt. with the neurologist because the symptoms went away

March (again) 2013 - first day of Spring:
Mows for the first time, 5 min. in he comes in stumbling
double vision returns overnight
Wakes up with severe pain in the back of his head
Severe headaches start
Starts hiccuping on a daily basis (never before?)

May 2013:
Double vision continues
Balance worsens by the day
Headaches are 24/7 now
Family doctor keeps telling us it's allergies
^prescribed vertigo pills, Amox., Prednisone and an Anti-inflammatory
^Medication do not help, at all
Starts complaining about a "crawling" feeling on his scalp

June 2013:
Schedule appt. with neurologist
No longer able to go into work (liability due to lack of balance)
double vision continues
constantly complaining of headaches and pressure in the back of the skull
starts complaining of mid-back pain (can't bend over)
Visit ENT: finds nothing, 100% on hearing test
Ear pain continues (right side only)

July 2013:
Neurologist looks at MRI from last year for 15 seconds, says he doesn't see anything wrong.
Order MRI
I beg for C-spine and T-spine MRI, he agrees
Tells us we need a psych test due to mild memory loss (stress and lack of sleep, not memory loss)
Tells us we need to see a physical therapist for balance issues (i don't follow thru since we don't know what's wrong yet)

* So this is where we're at. I am currently going over all 3 MRI's from this week. Brain, C-spine and T-spine.

Should I have these results sent to a Chiari Malformation specialist? We live in southern Ohio so we're not far from the Mayfield Chiari Malformation Clinic in Cincinnati.

Does this sound like CM? The doctor also wants to rule out MS, but he feels in his heart that this isn't MS.

Is there anyone on this site who could look over his MRI results and tell me if anything stands out? I only ask because the Dr. can't see us until mid September.

He is out of work, we have no insurance and we're desperate for answers. :confused: :(

razzle51 08-02-2013 11:47 AM

you don't have a picture of your brain and brain stem so don't know if he has chiari or not

razzle51 08-10-2013 02:45 AM


Originally Posted by razzle51 (Post 1004301)
you don't have a picture of your brain and brain stem so don't know if he has chiari or not

hard to tell

only1betty 06-28-2020 01:50 AM

If you haven't by now gotten good answers you could check out the online pages on Chiari and Syrinx. They also have several pages with MRI images you can use to compare, I have looked at your films but don't want to make judgments as I am only familiar with my own issues of same.

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