NO DX and Frustated
 

I am still in limbo land and have been since 2010 and it is looking like I will remain in limbo land forever, my symptoms began in 2010 and look like PPMS but so far no lesions are showing on mri's I was told I should find MS specialist so I looked online at MS society and found 2 MS clinics both of which I am about the same distance from so I contacted them sent them copies of my mri's and a letter from a Dr. (neurologist) stating my symptoms, today I was contacted by the MS clinic saying they would see me however they are afraid I would be unable to afford them finding how to pay for getting a real diagnosis is proving very difficult medicare would pay 80% but I would be responsible for 20% plus my transportation and hotels as it would mean going and staying there for perhaps a week or more funding programs would not be available until I have verified MS diagnosis, to say the least I am more than frustrated and discouraged anyone have suggestions?