New to this site
 

Hello friends;
I have been looking for you high and low. A site where I can come 24/7 and chat with someone who has Parkinson's. Is this such a site? Is it also correct of me to assume I have to submit 3 entries before I can go on chat?
Please someone answer me? I am having a hard time navigating this site.

I was diagnosed with Parkinson's stage 1 3+ years ago. I was in shock, and lived in denial for a looong time. I have been doing fairly well, until this summer when I believe the excess heat did me in. I feel so much weaker, poor balance causing me to fall and broke ribs, walking awkward.

I just need to talk to other "Parkies." I think that is a cool nick-name for us.

In loving kindness, Eva Gabrielle:)

Welcome. Glad you found us...there will always be someone awake at any hour of the day in our group. I have never been to the chat room,....don't know how to do that either...not good with computers and my old one that was gifted to me is about to go under I think you will catch onto the site quickly...if I can, anyone can! God Bless

Welcome aboard! You'll find plenty of people here willing to talk to you.

Best of luck,

Gary

Welcome
 

Welcome Eva,

I am glad you found NeuroTalk. Stay physically active and mentally positive. Everyone here can help you!

Jill

Heat and humidity has a huge effect on my symptoms
 

Hello Eva,

Welcome to our site. The group takes keeping updated on the most recent Parkinson's research very seriously. Many here feel strongly that the usual drugs taken for the disease can be treated with healthier options.

We realize that every person with Parkinson's disease has a different set of symptoms. Many try to do their own efforts at research by posting surveys or looking for people who have symptoms similar to their own.

We are all in different stages of the disease. I am in the moderate to severe stage of the disease. I am totally having problems with all the summer changes.

Which is why I live in Minnesota.

Your new friend,
Vicky

Welcome Eva,

I am also a new member and found this Forum very informative.
As per previously posted answer to the similar question as yours the "Initial posts by new members will only be visible to the moderation/administration team until they've been approved. Once a new member's posts have gone through the approval process, future postings will be immediately visible without further screening. During this period new members will not yet be able to post URL links or use the chat rooms". If you go to the [B]FAQ there is a lots of info how to navigate this Forum.

Bo

Dear Vicky;
I am so glad you wrote!!
I am in 1st stage PD for 3 years,
and the heat and humidity has bothered
me terribly!
What do you do to take care of yourself in this kind of weather?
Lovingly, Eva Gabrielle

Thank you Jill. That is exactly what I do:)
Lovingly, Eva

Yes, heat and cold are a challenge for most PWP sooner or later. It disrupts our ability to keep things under control. (It is strange that so many of us struggle for control at both micro and macro levels even long before diagnosis.)

One way to look at PD is to imagine an old fashioned child's top. You would wind a string around it and secure one end of the string to your hand and leave the other secured simply by the wrapping itself. Then, with the right flick of the wrist, you would set the top to spinning. After some initial wobble it would become almost magically stable and could continue spinning even as a child's hand sought to test its limits. Eventually it would begin to lose spin and go slower and slower. Wobble and vulnerability increase and recovery becomes less certain. A child's pudgy finger or a heat wave becomes a challenge and a threat. Each day begins with a certain amount of spin and that amount gradually declines over time.

There are many challenges to maintaining our spin / our balance / our homeostasis. We generally label them as "stress", take the bit in our teeth, and go on. A big mistake for most of us. Pamper yourself. Neither too hot nor too cold. Just right. The Goldilocks Disorder. :)
-Rick