In Your Head Diagnosis
 

So I started on this forum a while ago with vertigo, falling etc. etc. I'm hoping someone might read this and have thoughts.

Been dealing with tremors and other annoying neurological symptoms for months ongoing and never ending. My neurologist thinks its Parkinson's. Sends me for a datscan comes back ok. He's stumped and floored because of all these symptoms.

Put me on topomax. No real effect. Symptoms worsen. Puts me on sinimet when he sees me next because I'm shaking so bad. Sinimet works until I get to a dosage that makes me sick. Brings me in. I'm worse of course off any meds. Puts me on Neupro. Works great!!!!

In the meantime my movement disorder appt finally comes. I go yesterday. He sees all these symptoms tells his student all the signs show cognitive and neurological issues. Pretty much ignores half the stuff I try to tell him and then comes back with we're testing you for Wilson's disease but the tremors are probably caused by childhood issues you need to confront. Being tested for Wilson's and he's recommending therapy and a closer relationship with God.

Help!!!!!! I realize stress worsens things but why doesn't it ever stop? Why when I'm laying on a beach do I still twitch and shake and stutter and fall? Do frustrated right now I can't even breathe. I'm one of the most optimistic people in the world and open to a fault. I just don't take that as a diagnosis at all.

I'm fine going to a therapist. I'm just not at all convinced that's a cure. Anyone can relate to the it's all in your head diagnosis?

Ps yes I am B12 deficient and being treated. I know there's a lot of people who ask.

I do know the feeling/stigma/guinea pig syndrome of being bounced from doctor to doctor, treatment to treatment without getting any concrete DX/answers.

Personally, I'd rather they tested you for any other deficiencies, treat them all and get you "balanced" before putting you on Rxs, but I'm not you, nor feeling your symptoms.

IF these symptoms are truly stress-related, all that stress didn't just build up overnight, so I also wouldn't expect a day/week/whatever at the beach to resolve them either... just sayin'... :cool:

BTW & FWIW w/o agreeing/disagreeing on the cause, there are different kinds of "in your head" DXs. What they share in common is that the symptoms/pain are as real as organic causes.

Doc

I have removed myself from all medications with the exception of the B12 at this point, trying to see if this might help at all. I'm honestly starting to look at possibly some other things as a cause and maybe that will jog something. About the times my symptoms started I had a hysterectomy removing everything except my ovaries. My ovaries have been growing cysts every since two years ago; monitored every 3 months by my OB. In addition, I've had a mammogram that showed 9 lumps that they are keeping an eye on. I'm beginning to wonder if maybe my body is trying to say something to me.

I know I've been tested for thyroid at some point in the testing manifesto, but I can't help but think that maybe there's some sort of link along with this. I also am an avid bruiser and bleed profusely. What I know of my mother (died at 50) and her mother (died in her 40's) is that they both of them had bleeding/bruising issues as well as my daughter. With her to the point they checked for Von Willebrand's disease and even trounced into the leukemia realm. She was ok, but the tech said that the VW test can produce false negatives dependant on when they are taken. My mother had MS as well, I was checked...no lesions. Her mother died when she was around 16. All I know is that she was in a wheelchair when she died.

I've also been through tons of therapy through my mother and her issues. Literally, I was her support through years of pain, depression and several suicidal bouts... so I got to know therapists really well from the time I was 14 til the time she died 15 years ago. My coping skills are the backbone of my personality and I am proud to stand on those trials and raise my flag high as a survivor.

Reason I am so bothered by the stress equation is that while she was being told continuously that it was all in her head; and she continued therapy she literally had a physical issue that snuck up and killed her. Officially it was heart disease according the to death certificate, but I will tell you I saw her the day before at my baby shower and her neck had swelled as far as her ears. Told her she needed to go to the dr who just happened to say to her again to go see another therapist. She died that night.

I know I have to be patient, and I will do the therapy again as requested if only to prove a point... but I have no plans of leaving this earth any time soon without putting up a fight. I'll be honest, I see my familial history right in my own body right now and I am SCARED. I have never been more embarrassed, scared or demeaned more than I am right now, but I am determined to get this figured out. Somehow, someway....

FWIW, you need not feel embarrassed, scared, or demeaned here. I can't guarantee folks here will be able to figure this out, but they'll be here for you.

Doc