New here - POTS
 

Hi all,

I am new to the forums so hello! :)

I am 22 and since 17 have had a condition called Postural Orthostatic Tachycardia Syndrome, now I believe this is due to some form of peripheral neuropathy and am seeking advice on what natural supplements are of use just to try, im really against drugs unless absolutely needed.

I am currently looking at alpha lipoic acid, I am not sure what the best type is, I've come across:

Doctors-Best-Stabilized-R-Lipoic-Acid 100mg.

Any feedback on supplements known for promoting nerve healing is wanted please!

Hi Andy, Welcome.

That's probably one of the best RLAs; many here use it. It's also a heck of an antioxidant.
Lots of info to be found here and on the Supplements forum.

Do you have small fiber PN or any of the other conditions associated with POTS?

Doc

Hi Andy
 

Welcome to Neuto Talk. Take that Alpla lipoic acid, I do for PN as well. I have also been on B complex, B12 shots weekly for about a year. Take CoQ10 also. I use lidocane pain patches. The combination of all these has made my PN better over the course of a year. I sure hope some of this works for you. ginnie

Hello, I have P.O.T.S. also due to autonomic neuropathy. I take a lot of good supplements including Alpha Lipoic Acid, Benfotiamine (B1), vit D, vit b12, l carnitine, CoQ10 and others.

Hey,

I have not been diagnosed yet. I have an appointment in London in 2 weeks with a autonomic neurologist.

I had a lot of cold tingle feelings all over my face a year or two ago, then it went away but I still get an odd tingle on my legs or sometimes random places now and again, so I assume my POTS is some form of PN.

I dont sweat as much as I should in certain areas, and I sweat loads on my hands, arm pits and feet. Not sure if healing the nerves can sort this out or if its permanent?

My main concern is getting some sort of relief from my POTS.

Hello,

What is your sitting hr and bp compared to standing? Also what other symptoms do you get with POTS?

How has the supplements helped?

I feel like my life has been taken away im only 22! I have had it without any issues since 18, now its gotten a little worse.

Thanks,

Do you think its helped at all?

Is there any side effects? Im wary of trying new supplements, such as allergic reactions lol. Im the same with drugs my doctor gives me at times.

bump

thanks