NeuroTalk Support Groups - Newbie w/Movement disorder

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- - Newbie w/Movement disorder (https://www.neurotalk.org/new-member-introductions/192514-newbie-movement-disorder.html)

Stacy_11

08-08-2013 10:56 AM

Newbie w/Movement disorder

Hi-

I am a new member whom is affected with a movement disorder to my leg. It took about 8 years and countless MDs, tests, MRIs, etc to finally have a diagnosis.

Thanks for having me.

Darlene

08-09-2013 01:18 AM

Nice to meet you!!

http://dl7.glitter-graphics.net/pub/...gzugia7uno.gif

Stacy,

:Wave-Hello: It is great to have you come and be with us. You will fine a great number of dear friends to listen when you are in need of ears. Please, just let us know how we can help you out. You will find out we are supportive and relaxing place.

Please keep us up to date on your situation. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you. :smileypray:

billcumley

08-11-2013 11:32 AM

Hi Newbie

What is the actual movement disorder you were diagnosed with? Movement Disorder covers many kinds of sub-diagnoses such as Parkinson's, etc...

Bill

Darlene

08-12-2013 01:45 AM

Nice to meet you!!

http://dl3.glitter-graphics.net/pub/...e5ab7iehzi.gif

Bill,

:Wave-Hello: It is great to have you come and be with us. You will fine a great number of dear friends to listen when you are in need of ears. Please, just let us know how we can help you out. You will find out we are supportive and relaxing place.

Looks as though you having been finding your way around, let us know if you need some assistance.

Please keep us up to date on your situation. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you. :smileypray:

Stacy_11

08-12-2013 09:39 AM

DX.

Quote:

Originally Posted by billcumley (Post 1006456)

What is the actual movement disorder you were diagnosed with? Movement Disorder covers many kinds of sub-diagnoses such as Parkinson's, etc...

Bill

Hi Bill-
Focal Dystonia is my diagnosis....At least I know what is wrong with me as my family thought it was "in my mind":mad:...no...It is in my basal ganglia. They are totally non supportive.:confused:

If I am off my medication, my leg flails around, severe pain, it stiffens up (muscle contractions), and I cannot ambulate...initially my balance was totally off.

Thanks.

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