Another Way to Raise awareness,
 

No one had heard of it at my surgery but now even the receptionists could diagnose it. My Dr asked for links to the documnets I told him about and got the Practice manager to downoad and print out enough for everyone

Last year I prepared an e-mail saying I had RSD, that no one at my surgery had ever heard of it and this was the experience of 100's of others. If they already knew I apologise but it is the Worlds most painful incureable condition and the only chance of remission is if the correct treatments are given within 3 months of the onset. added links to AmericanRSHHope.org, McGill Pain index and NHS Choices webpage, warned them that Ice, hot and cold water contrast therapy and aggressive Physio must never be used.
I then used yell.com to find all the surgeries in MK if they had websites I went to them and if there was an e-mail address sent it to the Practice Manager. I got acknowledgements from everyone saying they hadn't heard of it and thanking me.

Great idea :)