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Ruro72
Hi from Western Australia. I am looking for someone who has Lems. I have been diagnosed now for 6 months . I have Infusions of Ivig two days every month and did not respond to mestinon at all well. Did much better on 3 4 Dap. Progressed to Imuran which made me quite ill and am now commencing an alternate drug Mycophenolate Mofetil. Early days yet. I know there are lots of support groups for. Myasthenic Gravas, but not Lems. Hope to hear from someone.
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Nice to meet you!!
Bardsgr,
:Wave-Hello: It is great to have you come and be with us. You will fine a great number of dear friends to listen when you are in need of ears. Please, just let us know how we can help you out. You will find out we are supportive and relaxing place. Click onto the following forum, there you will find some assistance. Autoimmune Diseases: http://neurotalk.psychcentral.com/forum44.html Please keep us up to date on your situation. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you. :smileypray: |
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