MS Specialist Visit Today
 

Hey everyone. Just wanted to let you know how my visit went. It went extremely well - we discussed things like for 2 hours of everything that has went on this year to me. The doctor told me that my last neuro didn't do a spinal tap and that is usually the one thing that can confirm MS. So Sept 16th, I'm having 2 MRIs done on my neck and back, and also a spinal tap done later that day.

She said that they were not going to diagnose me with MS, until the results come back from their own tests.

Just remember-after the spinal, lie down!! that means ALL DAY!!
And drink plenty of high caffeinated drinks-both prevent the awful headache and pain that can accompany a spinal.
I drank a couple of Monster drinks throughout the day, and only got up for bathroom breaks and meals. I had no aftereffects at all-and a negative result from the test...

Caffeine tablets (Wake-ups) along with at least two quarts of water before hand does the trick if you don't care for coffee. And yes, absolutely lay down; although some people only need to do that for a few hours. It all seems to depend on how it goes and how you feel it seems.

Also if you do get a nasty headache...and I mean a really nasty one (you'll know it isn't a usual type), go back in for a blood patch. It only takes a few minutes, isn't painful and gets rid of the headache straight away.

Good luck and I hope everything goes easily and well for you.

With love, Erika

So happy you have seen a specialist. I hope all your tests go well and you can get some answers to all those questions YOU have about YOUR MS. :hug: Great advice given on your spinal tap....be sure to follow it and the best of luck to you!

Good for you Luke.:)

Even though I was DXed after an LP/Mylogram, I'm one who doesn't
believe that an LP is necessary, unless the MRIs don't show MS or a
brain tumor may be a possibility.

Yes, after your LP, do lay flat, with no pillow for 24 hrs, if possible.
I found that, after, if a headache started, it would stop, almost
immediately, if I would, lay flat- no pillow, for 10 or 15 min.

Watch the caffeine, I can't take it, makes my heart go pitty pat.

my mri's confirmed my MS dx, however, after i was dx'd my dr wanted the LP and i did it. it was + for O-bands.

hope your tests go well. don't overdose on caffeine as it can affect your heart rate. but staying hydrated is important.

what did your brain mri show?