What my primary doctor told me.
 

Since I have had all the basic and more testing with no answers I asked my new primary what I should do. He discouraged me from getting the nerve biopsy. He also told me that though my neurologist was a good doctor that my condition is beyond him. He also said that there are still not many answers for neuropathy and that just a few years ago they only recognized it in diabetics so it wasn't taken as seriously as it should. He then recommended that I get a second opinion from a neurologist in a local teaching hospital setting who works with a team where he would discuss my case with that team along with students. My doctor told me that answers might be down the road, even years by doctors who are not even doctors yet. He also said that a second opinion may make it more possible to get the genetic testing that my insurrance is denying. So I'm waiting for an appointment. Just though I would pass that along.

Perhaps this site will help you. As you can tell, there are many, many types of PN.

http://www.ninds.nih.gov/disorders/p...neuropathy.htm

Stillfighting,

FWIW, that all sounds very reasonable to me, and very similar (except for the genetic testing part) to the things I was told -- even by the head of neurology at the major medical center/teaching hospital I went to.

That doesn't mean you have to sit on your hands waiting for answers down the road. Keep reading here and doing your own research as you can. Little things have come to light from time to time that have helped me manage PN.

Doc