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-   -   SSDI.. whaaaa?!?! (https://www.neurotalk.org/multiple-sclerosis/193653-ssdi-whaaaa.html)

AynaDee 09-03-2013 02:11 PM

SSDI.. whaaaa?!?!
 
:D

I bet you know what^ ^ that^ ^ means!

Yup! I just received my letter saying I was approved!!!!

Its been a long battle but I did it. All by myself too!

They screwed me on backpay but I don't even care cuz I can see a REAL doctor now! Woop Woop!

Soooo im not really sure how this works...
Im assuming I take this paper to dept of human services and apply for medicaid?

After I woke up to electrical shocks on the right hemisphere (which have still not stopped) , it was definitely something I needed to read!

Im so happy.so so happy!

Kitty 09-03-2013 02:35 PM

Congratulations! :) I know this has got to be a relief for you. I'm not sure what your state's laws and rules are for Medicaid and SSDI but there's probably a phone number on the ppwk you got with your award letter.

I know how relieved I was when I got the award letter. I had to wait 2 years for Medicare to take effect but when it did I was ready to use it!

I hope you find a good Neuro who will listen to you. That's half the battle. :)

Erika 09-03-2013 03:23 PM

That's excellent AnyaDee. I'm so happy for you. It has no doubt been a long uphill battle with a lot of worry. Glad that you can relax about it now :).

With love, Erika

NurseNancy 09-03-2013 03:26 PM

i am soooo happy for you. i too remember how relieved i was when i got approved. and i got turned down the 1st time and had to go the lawyer route.

i'm looking forward to hearing how the real medical care is going.

ANNagain 09-03-2013 04:50 PM

Great news!

Happy Dance while holding the wall.;)

Celebrate. Such a relief!
ANN

kicker 09-03-2013 05:24 PM

I googled "Why does Medicare take so long after getting SSDI" and www.disabilitysecrets and that was one of sites presented. I don't have to go on Medicare (have DH's insurance)so did not read. Good luck!!

4-eyes 09-03-2013 05:57 PM

Don't just accept that you got "screwed out of" some of the back pay. Contact them and ask about it. If you are due more money, then by all means you deserve it. If you aren't due, you will understand why it seems like you were "screwed." Don't be intimidated or shy--just ask!:)`

Congrats! I hope you get some good care lined up pronto.

SallyC 09-03-2013 05:59 PM

Yeaaaa Ayna, Super!!!:D

karilann 09-03-2013 07:19 PM

•If your claim is approved 24 months after application, you will be entitled to 12 months of Back Pay (even though a 24 month waiting period less a 5 month waiting period is 19 months, the limit for Back Pay is 12 months).:hug:

For anyone there is a 5 month "no pay" rule. After that you can only draw up to a 12 month amount. Years ago, you could get a lot of back pay.....not anymore......12 months only if you have waited long enough for your approval.

If you are not making very much, check into drawing a supplemental amount called SSI. Talk to your local Social Security office and make sure you do not qualify for other things.
Congratulations!

Debbie D 09-04-2013 09:58 AM

I didn't get Medicare card in Illinois until 12 months later. I actually have excellent insurance through DH and don't need it but I must take it due to taking SSDI payment.


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